What we do

The Daisy Garland charity was set up in November 2004 to keep Daisy's memory alive and to help other little children like her.

We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.

We are the only charity funding full-time Ketogenic Dietitians working within NHS hospitals nationwide - each dietitian costs up to £47,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.

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SUDEP Awareness Day 2015

Oct 23rd, 2015

Today is 'SUDEP (sudden unexpected death in epilepsy patients) Awareness Day' and our thoughts are very much with those families who like Sara and David Garland have lost a precious child, or indeed a loved one, to SUDEP. xx

SUDEP Awareness Day was launched by SUDEP Action to raise awareness about SUDEP, its risk factors and to highlight the need for more research into this tragic event.

Sudden unexpected death in epilepsy patients (Sudep) is the unexpected death of a person with epilepsy, who was otherwise healthy, and for whom no other cause of death can be found. It is a rare, but devastating, outcome for approximately 500 people in the UK each year. Many of these deaths are almost certainly preventable; but more research and awareness is needed to achieve this. 

The biological mechanisms of SUDEP are still not clear, but most of the deaths are thought to be caused by a severe convulsive seizure affecting vital functions such as breathing and heart rhythm. Once scientists understand the precise events that take place during SUDEP, they will be able to focus on the development of preventative therapies.

Research is also looking for the presence of traits (known as risk factors) that identify people with epilepsy who are at particular risk of SUDEP. Knowing who is most susceptible will hopefully allow their doctors and families to take extra precautionary measures to keep them safe.

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