What we do

The Daisy Garland charity was set up in November 2004 to keep Daisy's memory alive and to help other little children like her.

We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.

We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £47,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.

Epilepsy affects 1 in every 100 children in the UK
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The Daisyometer

The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.

> Donate now

Target: £107,100
£65,975 to date

Stories

Neve's Story

Neve's Story

"Our daughter, Neve, has Dravet Syndrome. She had her first seizure when she was just 4-months old and has multiple seizure types, which are highly drug-resistant. Her seizures range from short absences to status seizures lasting an hour and a half.

We started the diet when Neve was 22-months old and have never looked back. We had to make quite a few tweaks in the early days but our fantastic Daisy Dietitian was always at hand to advise and support us. In the first couple of years we managed to reduce Neve's medication by two-thirds. Her long status seizures disappeared and we no longer ended up in hospital with every seizure. As her medications were reduced so our little girl 'woke up'. No longer in a pharmaceutical stupor, she began talking and interacting with us much more and she started walking and taking an interest in her toys.

As well as epilepsy, Neve has autism and in the last 3 years we were able to make her ketogenic diet both dairy and gluten-free. This was much easier than it sounds as Neve would happily take a variety of oils from a syringe and so we were no longer had to add the fat to her food! In total, we stayed on the diet for nearly 6 years and I can't imagine what life would have been like without it.

The diet is an amazing treatment and it has been a wonderful privilege speaking to Sara and David Garland throughout our keto journey".

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