What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
> Daisy's story
> The Ketogenic Diet
> Our Ketogenic
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> How you can help
> Media coverage
The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
Archie's first seizure came as such a shock to us. We were on a family day out when the first seizure struck. Archie had been fast asleep on my shoulder and when I lifted him down to check on him, I noticed his eyes were rolling and he was unresponsive. We were petrified. We dialled 999 and were taken into hospital by ambulance.
After various tests we were discharged from hospital with a diagnosis of epilepsy and dates for further tests. We felt so alone and didn't know what to do next - our world had been turned upside down.
So far Archie's seizures have only occurred in his sleep, requiring emergency medication to stop them. Because of this we were scared to leave Archie for a second and decided a 24 hour vigil was the only way forward. My husband and I were both exhausted.
One morning after another sleep deprived night the phone rang and on the other end of the phone was the answer to our prayers - Sara Garland. She was calling in response to a message my husband had left on their charity ansaphone asking for their help.
I was practially in tears once off the phone as I felt that I'd finally found someone who fully understood our situation and knew exactly how desperate and alone we were feeling. The relief I felt after chatting to Sara was immense.
During our conversation, Sara told me about the breathing monitor grants The Daisy Garland offered, which would alert us if Archie's blood oxygen levels dropped in the night or during daytime naps, indicating a possible seizure. This was the answer we had been searching for to keep Archie safe. We immediately got the required paperwork togeher and within 48 hours from that first call we had received our monitor!
That night we went to bed cautious but also reassured and managed to all get some much needed sleep. After a little bit of tweaking the monitor is working perfectly and we feel as confident as we can that Archie is safe.
We are now six weeks along the road from Archie's initial diagnosis and he's doing very well. We have even built up the confidence to put him back into his own room - thanks to the monitor so generously donated by The Daisy Garland.
I cannot put into words how much the on-going contact and support of The Daisy Garland means to us. We are eternally grateful to them for their overwhelming kindness in donating our monitor and are now able to start enjoying Archie again for the happy little chap that he is!
Thank you, thank you, thank you.
Emma, Steve, and big sis Sophie xxx< Previous Story | Story 14 of 29 | Next Story >
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