What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
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The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
The Dhond Family
The Dhond Family
I was introduced to 'The Daisy Garland Charity' just before Rohan's first birthday. A mother of a little boy with epilepsy who I had befriended had highly recommended Sara Garland to me for her advice and support with regards to epilepsy, medications and the ketogenic diet. Rohan had been diagnosed with Congenital Bilateral Perisylvian Syndrome when he presented with a seizure at 7 weeks old. It meant that 80% of Rohan's brain had wide spread damage and he would suffer from an array of problems and the most difficult being uncontrollable epilepsy. To watch my son go through hours of seizures on a daily basis where he would scream from the pain has been unbearable.
When I contacted Sara Garland I was amazed at how somebody who had been through such an horrific experience could give so much into helping others. Sara gave me tremendous amounts of help and advice and when there were times when I felt that I couldn't carry on she would send me the most up-lifting emails which would give me the strength to carry on. She always reiterated that tomorrow was another day.
Sara's equally amazing husband David ran the London Marathon to raise money for oxygen saturation monitors which monitor children at night who have epilepsy. If a seizure affects the child's breathing the monitor will raise an alarm which alerts the parents. Rohan received one of these monitors from the Daisy Garland Charity and we are eternally grateful for it. Not only has it been a peace of mind at night but during times when Rohan is 'not himself' we can connect him up to the monitor and it gives us his heart rate and his oxygen levels and we know immediately whether he needs to be taken to hospital or not.
Rohan is now 2 1/2 and started the ketogenic diet in November 2009. He now is like a different boy. He is like part of the family at long last. Gone are the seizures which made him scream. He now smiles and makes little noises and he is beginning to use his vision. He has a 4 year old sister Lily and a 1 year old sister Rose-Erin who just adore him and we can tell that he loves them.
The Daisy Garland Charity have been an extremely important part of our life and we as a family are extremely grateful to them.
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