What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
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The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
A Big Celebration!
On the 3rd October 2009, we had a party to celebrate my 40th birthday and Maddie’s 10th birthday. It was a great party and instead of presents Maddie and I decided that we would raise funds for The Daisy Garland. We raised over £330 and we were delighted.
The charity meant so much to us because of our own journey living and coping with Maddie’s epilepsy. Sara knew what we were going through, she understood and she was a much needed lifeline at one point on that journey.
Sadly, Maddie was never a candidate for the Ketogenic Diet. After many agonising appointments and hospital investigations we found out that Maddie was a possible candidate for surgery. People have said that it must have been a hard decision to make for your child but actually it wasn’t. Her life was so hard with 3 to 4 partial seizures a day, sometimes lasting up to 15 minutes long. Therefore we decided to go for the surgery. Maddie was so brave, it was a difficult procedure and heartbreaking to watch her go through it. However, her final surgery was on 2nd April 2009 and she has been seizure free ever since! Praise God! I say that because Maddie asked me if she could be baptized so the night before her surgery we were both baptized in St. Christopher’s Chapel in Great Ormond Street Hospital.
2009 was a truly amazing year and it ended with Maddie winning a local competition to be Santa’s helper for the day! We had the best Christmas ever and now we are just having a ball! Thank you Sara for all your kindness, we will never forget Daisy and the wonderful work that you do.< Previous Story | Story 28 of 29 | Next Story >
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