What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
> Daisy's story
> The Ketogenic Diet
> Our Ketogenic
> Latest news
> How you can help
> Media coverage
The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
“In July 2015 Jessica, our previously fit and active 9 year old, had 40 seizures in 1 day. [Jessica has since been diagnosed with Ring20 (mosaic)]. Despite a cocktail of anticonvulsants Jessica’s seizures increased, some lasting up to 30 minutes. Medication caused her to sleep most of the day severely disrupting her sleep pattern at night and her behavior became extremely challenging making us wonder if some of what we were seeing was medication related?
With guidance from our consultant we withdrew as much of her meds as possible and that November Jessica started the MCT ketogenic diet under the care of Janette Buttle a Daisy Garland Ketogenic Dietitian at the Royal Hospital for Children, Glasgow. Jessica adapted very well to the diet and although we continued to see some seizure activity it was clear that the diet was having a huge positive impact on her quality of life. Her energy levels returned and she was playing football and attending dance classes again. We can’t emphasize enough how wonderful it was to have our little girl back!
Working closely with our Daisy Dietitian and with much patience and a few dietary tweaks the frequency and duration of Jessica’s seizures reduced signifcantly - her tonic, complex partial, night and cluster seizures no longer exist! It’s hard to imagine now that she was having up to 50 seizures a day on meds pre the diet! Following a couple of successful camping trips, we are now working on having a family holiday abroad, with Janette helping us work through the detail of running the diet in another country.
As parents we now feel in control compared to pre-diet days where we felt devastated and completely helpless. We highly recommend the ketogenic diet. It’s time consuming and requires commitment, but it has been our absolute lifeline, as has the support from The Daisy Garland who have been there for us every step of the way – their ketogenic funding has been fundamental to the success of our keto journey.” < Previous Story | Story 3 of 29 | Next Story >
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