What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
> Daisy's story
> The Ketogenic Diet
> Our Ketogenic
> Latest news
> How you can help
> Media coverage
The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
“Following the birth of my daughter Ella life seemed absolutely perfect, but at the tender age of 3 months Ella suffered 3 seizures in quick succession.
Anticonvulsant medication proved ineffective in controlling her seizures. She would completely ‘zone out’ spending most of the day sleeping - waking only to feed or to have yet another seizure. Ella’s seizures quickly escalated until she was having up to 100 a day, her development slowed and some days she would be in her own world for hours on end not taking in any of her surroundings or responding to my voice.
When Ella was admitted to hospital for a week-long EEG her consultant told me about the ketogenic diet, putting us in touch with Janette a Daisy Garland Ketogenic Dietitian. After a long chat with Janette I decided that this was the best next option for us. Ella started the ketogenic diet when she was 7-months-old and despite being so young she took to the diet very well. Within a few weeks I saw positive results - Ella was less sleepy and more alert and we saw our frst ever seizure free day, which turned into a seizure free week!
The ketogenic diet has given Ella the opportunity to do all the normal important baby stuff and has vastly reduced her seizures from the 100 a day she was having on medication to none on a good day and up to 5 on a bad day. We cannot thank The Daisy Garland enough for their help and support, not only in funding Ella’s ketogenic dietitian and sending us a fabulous Welcome Box to get our keto journey off to a positive start, but also for giving us a grant for an epilepsy monitor, which considerably reduces bedtime stress.
Ella still has a long road ahead of her, but I know that continued Daisy Garland support will be sure to keep us both going.” < Previous Story | Story 4 of 29 | Next Story >
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