What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
> Daisy's story
> The Ketogenic Diet
> Our Ketogenic
> Latest news
> How you can help
> Media coverage
The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
“Our son Rudy will be 4 in March. He can’t walk or talk yet, but is happy, mischievous, determined, full of fun, extremely tough and adored by all who meet him.
Rudy was born with multiple hemangiomas (benign tumors filled with blood) over his face and body. What we didn’t know was that the tumors were also in Rudy’s brain, and when he was just 1 week old, they bled leaving Rudy battling for his life. Thankfully he fought through, but was left with damage to his brain, low muscular tone, hemiparesis, global development delay, visual impairment and severe epilepsy.
From the age of 6 months to 2 years, Rudy was having up to 16 different seizures a day. It was relentless. He was on 5 anticonvulsant drugs, as well as emergency medication and 2 other drugs for his hemangiomas. Tests at GOSH revealed that Rudy was a potential candidate for brain surgery, which terrified us. We felt helpless and full of despair.
At a neurology appointment our consultant suggested the ketogenic diet, but the thought of taking on something else was just overwhelming. Sensing our reluctance she suggested I speak to another mum whose son was on the diet. We met over coffee and she raved about this miracle diet and the positive changes it had made to her son. I was convinced! There isn’t a ketogenic service in Wales so we were referred to see Nicol Clayton, a Daisy Garland Ketogenic Dietitian based at Southmead Hospital in Bristol.
The Daisy Garland welcome box we received prior to starting our keto journey was heart warming, even exciting, and for the first time I felt we weren’t alone.
The first 4 months on the diet were horrific. Rudy was unhappy and lethargic, suffered numerous ear infections, and his seizures increased. Then they halved but were far more aggressive, but we persevered and rode the storm. 7 months into the diet, Nicol suggested a diet tweak, and we began weaning Rudy’s Phenobarbital. The seizures stopped. Just like that!
We continued with the drug wean and Rudy became brighter and brighter and was doing new things. His laughter sounded like that of any other toddler and he started giving us cuddles.
By Christmas 2014 just before his 3rd birthday Rudy could finally sit up unaided – the best present ever! It’s hard to put into words the difference this diet has made to our lives. Rudy is still on 2 anticonvulsant meds (which we are slowly weaning) and has extremely complex needs, but not having to deal with the daily grind of seizures and the nasty drug side effects makes life far easier.
We are so grateful to The Daisy Garland for their recipes, information, research, empathy and encouragement making you feel that you are not alone but part of one big keto family! We’d never have got through this diet if it were not for the support of such a wonderful charity and the expertise of such a skilled dietician. We truly cannot thank you enough!”
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