What we do
The Daisy Garland charity was set up in November 2004 to keep Daisy’s memory alive and to help other little children like her.
We fund an increasing number of Ketogenic Dietitians who work in National Health Hospitals treating hundreds of children with intractable epilepsy.
We are the only UK charity funding Ketogenic Dietitians - each dietitian costs up to £45,000 per annum. If you think you could help us fund our next Daisy Garland Ketogenic Dietitian go to HOW YOU CAN HELP. Be in touch today.
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The Daisyometer shows how much we have raised so far to keep our Daisy Garland Ketogenic Dietitians in place for a total of 3 years at the Royal Hospital for Sick Children, Edinburgh.
The Garland Family & The Daisy Garland Charity
Who we are, why we are here and what we aim to do for you and your special child...
Our Aims & Objectives
We aim to improve the quality of life for children with difficult to control epilepsy accompanied by developmental delay.
We do this by following our objectives:
- The promotion and protection of good health for children with difficult to control epilepsy accompanied by developmental delay.
- To advance education of the public by the provision of a website offering support and assistance to parents of children with epilepsy.
- To relieve such children by the provision of equipment with the object of improving their conditions of life.
The Little Girl behind the Charity
In 1998, Daisy, our only child at that time, was diagnosed with a rare and complex form of epilepsy - Severe Myoclonic Epilepsy (Dravet Syndrome). She was just five and a half months old. Tragically, our darling daughter died as a result of SUDEP (sudden and unexpected death in epilepsy patients), just three days after her 6th birthday. From the early hours of 14th April 2004, our world was turned completely upside down, our lives changed forever.
Sara, David and Grace Garland at the Daisy Garland Charity Ball
Where do we go from here?
In our minds, we had no option but to try to turn a hugely devastating tragedy into something positive with the hope of helping other children like Daisy. And so The Daisy Garland charity was created.
The Daisy Garland Charity
The Daisy Garland Charity was set up in November 2004 with the aim of keeping Daisy's memory alive and to help other little children like her. We are a small family-run charity with a handful of dedicated volunteers dotted around the country who generously donate their time and energy doing what they can to fundraise. All the money we raise goes directly to Daisy's charity enabling us to offer a wide range of support to children and families living with epilepsy.
London Marathon Runners: Angie Rees, Claire Beecroft and Bob Brown
How We Fundraise
Someone once said that charity is a virtue of the heart, so we count ourselves extremely lucky to have the support of a number of big hearted people who help us raise much needed funds. Our main fundraising event is the annual Daisy Garland Ball which is held in London to celebrate Daisy's birthday. Our kind supporters do all they can from running marathons to holding coffee mornings and bric-a-brac sales. We also receive donations from generous individuals, schools, various trusts and companies all of whom recognise the important work we do and are keen to help us realise our goal.
How We Help
Here are some of the ways we help:
- We have funded fourteen Daisy Garland Ketogenic Dietitians who work within NHS hospitals throughout the UK, with more planned to follow.
- We provide grants for night-time breathing monitors (SATs/Epilepsy Monitors) for use in the home.
- We provide various small one-off grants.
- We supply Daisy Garland Ketogenic Handbooks to dieticians, schools, hospitals and parents/carers of children with epilepsy.
- We provide support for parents through our charity phone-line, email, The Daisy Garland Facebook page and Twitter.
- We provide complimentary Daisy Garland Ketogenic Welcome Boxes for every new family starting the Ketogenic Diet.
Daisy's Little Sister - Our Saving Grace
In early 2005, to our huge excitement I discovered that at the age of 41 I was pregnant again! One sunny Wednesday afternoon in September, Grace Olivia Garland was born to two delighted parents. Since that day Grace has brought immense joy back into our lives. We feel fortunate to have been blessed with two wonderful daughters.
We are delighted to have Jane Asher, Rikki Londesborough and Anne Wadsworth OBE as our patrons -
Jane Asher - Daisy Garland Patron
Besides her prolific work for theatre, film and television Jane Asher is recognised for her cake business and is a best-selling author.
"I was very moved to read of Daisy's story, and very honoured to be invited to become a patron of the wonderful charity set up in her name. I so much admire the way Sara and David, having had to endure every parent's worst imaginable horror, are reaching out to other families to help them avoid some of the suffering and distress that can be caused by childhood epilepsy. I've no doubt the lives of many children with this complex and debilitating disease will be transformed through their efforts, and I hope to do my bit to promote their excellent work."
Our patron Rikki Londesborough
"I am very grateful to have been asked to be a Patron of The Daisy Garland. It is a charity that I support with all my heart. I know as a parent of a child with epilepsy the terrible heartache of watching your child seize. Time stands still and there is an awful loneliness. I have lain all night by the side of my child holding his wrist, feeling his pulse hoping that there will be no more seizures...and then the daytime dread of what might be ahead? The Daisy Garland is wonderfully positive and gives relief with night-time breathing monitors so children can sleep safely in their own beds, along with the encouraging and potentially life-changing ketogenic diet supported by specialist Daisy Garland funded Ketogenic Dietitians. The Daisy Garland makes us feel less lonely, less care-worn and gives us hope that we can make a difference to our children's lives."
Anne is a successful businesswoman, who for many years has been helping charities in the fields of integrated health and disability in all its many forms to raise funds and achieve their inspiring goals.
"I have come to know Sara and David Garland well over the past four years, helping them to raise matched funding to provide a life-changing Ketogenic Dietitian in two large NHS hospitals - the Royal Manchester Children's Hospital and the Royal Hospital for Sick Children in Glasgow. Reports from both Dietitians have been extensive and very encouraging, with some exciting results achieved in reducing and in some cases, even eliminating seizures.
I am delighted to become a Patron of this wonderful charity and to have the opportunity to support Sara and David in their work going forward. My admiration for their determination and fortitude in establishing and making such a success of The Daisy Garland knows no bounds. Their inspiring example in turning such a dreadful loss into a lifelong legacy of helping other children with drug resistant epilepsy deserves all our help and support"
Anne Wadsworth OBE
Our Pretty Daisy Charity Merchandise
Why not treat yourself to a little retail therapy? Every purchase you make will help a child with epilepsy. Our range of merchandise is decorated with our Daisy logo, exclusively designed for us by award winning children's book illustrator Nick Maland who also designed our range of greetings cards and Christmas cards. Click here to visit our shop now.
Every penny counts! Daisy coins donated by Mrs Ethelston's Primary School in Uplyme
How you can help us
In order to continue our important work we need to increase our circle of fundraising volunteers – perhaps you would consider running a marathon or holding a coffee morning? Please contact us if you can help. We are always grateful for any donations, no matter how small – every penny goes directly to helping children with epilepsy. You can donate NOW by clicking here.
Thank you for joining us on ‘A journey of hope… for children with epilepsy’.
With warmest wishes
Sara & David Garland
Daisy's Amazon Shop powered by
Start your Amazon.co.uk shopping here. We will earn commission on your entire purchase without this costing you a single penny more. So why not tell all your friends & family about it? Thank you for supporting our work to improve the quality of life for children with difficult to control epilepsy.