"Having support from The Daisy Garland charity has been such a positive experience.  I have watched Jax suffer for 12 months now and it hasn't got any less frightening to witness my boy in full tonic clonic seizure.  SUDEP is a fear shared every night - to receive a monitor which will alert me to seizure activity will hopefully provide some form of normality back and help to keep Jax safe whilst he sleeps - thank you so much 💙"