It's been a tough year but we're a tough team!

   

  

Had Daisy Garland not died of SUDEP she would have been 23 years old this year.  In honour of Daisy's memory, Team Daisy - Sara, Karen, Nikki and Jean -  are taking on a mammoth WALK4DAISY challenge!  Each of us walking 23 miles during the month of August, raising funds, so badly needed, towards our Family Support Programme.  As a result of the pandemic 100+ planned fundraising events were cancelled, making it a hugely challenging year for our small, (but hugely impactful) charity... and this is why we are asking for your help...

Whoever you are and wherever you are in the world, will you please join our WALK4DAISY in the hope of creating a fabulous Daisy-Chain of walkers? Every penny you raise from this event will go towards our Family Support Programme, to help fund:

Night-time breathing (SATs/epilepsy) monitors helping keep children with drug-resistant epilepsy safe while they sleep, thus reducing the risk of SUDEP (sudden unexpected death in epilepsy).   It costs £376 to fund an epilepsy monitor and  £880 to fund a SATs monitor. Please support us so we can provide as many of these life-saving monitors as possible for children on our growing monitor waiting list.   

Daisy Garland Ketogenic Dietitians and Support Workers. We have funded 26 so far!  All of them working within the NHS giving babies, and children like Ben who suffer from drug-resistant epilepsy the chance of seizure freedom.  A full-time Daisy Dietitian costs £48K pa. The more ketogenic services we support the more children we can help.  

The Daisy Garland is a small charity with big impact!  Our Family Support Programme provides practical and emotional support for some of the 18,000 families living in the UK whose children have drug-resistant epilepsy.  Unlike some of the larger charities, we do not receive statutory funding so without without your support The Daisy Garland would cease to exist. 

Please, please, dig deep and support us.   Every penny counts.  Every child matters.

If you would like to be part of our WALK4DAISY Chain please click on the the link below to request your WALK4DAISY fundraising pack.

Request a fundraising pack 

To sponsor Team Daisy on their 23 mile August trek click on the donate button below.   Your support means the world to us - thank you. 

DONATE NOW