We are unbelievably grateful to busy keto mum and Daisy Garland Trustee, Sarah Barker, for signing up to run the London Marathon later this year raising funds on our behalf.
Sarah tells us more here...
"I should start by saying that I entered the marathon on a whim - I've never wanted to run a marathon as it's a bit too far to comprehend and the amount of training required is simply ridiculous! I couldn't believe I got a place in the ballot, first time! There's no doubt over who I'll choose raise funds for - the most amazing charity that's helped our family no end: The Daisy Garland.
My 8 year old daughter, Isabelle, was diagnosed at 10 months old with a rare and catastrophic epilepsy called West Syndrome which damaged her brain and caused Global Developmental Delay.
The Daisy Garland has been a lifeline to our whole family in terms of ongoing emotional support and in providing a night time breathing monitor so that we can sleep at night knowing that she is at a much greatly reduced risk of SUDEP (Sudden Unexplained Death in Epilepsy Patients).
The Daisy Garland also provides fully funded dieticians to the NHS so that Isabelle can use the incredible ketogenic diet as a form of treatment alongside three strong anticonvulsant epilepsy drugs. The ketogenic diet is often used as a last resort when medications or surgery do not control seizures as it is extremely strict and complicated. It cannot be undertaken safely without a referral from a paediatric consultant and without the guidance of a trained ketogenic dietician.
Isabelle started the ketogenic diet in December 2017 after eight different medications failed to bring seizure control. She was taking three of these strong medications at the maximum possible dosage and was still having 80-100 seizures each day. Incredibly, since starting the diet, Isabelle’s seizures have reduced to 5 a day and her cognition has hugely increased. Perhaps even more incredibly, over the following 18 months, we completely weaned her off those strong drugs and now, her epilepsy is only being managed using the ketogenic diet. It’s incredible what she has achieved, against all odds, and we are incredibly proud of her. This would never have been possible without The Daisy Garland providing the dietician to the NHS or the support to us and our family."
We will be cheering you along every single step of the way Sarah! 👏👏👏👏 Good luck with your training. Please know that we are incredibly grateful for your unswerving support. You are an absolute gem! 💜
Please click the link below to sponsor super Sarah now xx
To read Sarah's blog detailing the hours of dedicated training she has put in for this challenge click below xx
Sarah Barker