I am running the Virtual London Marathon in aid of my Granddaughter Amelia, who is 2. Amelia has focal epilepsy, and was diagnosed at 6 months old. Thankfully Amelia’s epilepsy is currently controlled, however, she is currently going through testing at Great Ormond St to see if she is a suitable candidate for epilepsy surgery. It is believed she may have focal cortical dysplasia, and if her current medication fails, she will be considered to have intractable epilepsy. During Amelia’s difficult periods, Amelia can have several seizures throughout the night, making nighttime’s very worrying and often sleepless for her parents.
I decided to run the London Marathon for The Daisy Garland to enable them to continue their incredible work of helping families with monitors for other children whose epilepsy continues throughout the night. Monitors are invaluable in ensuring all of the family can rest at night easier knowing they have the correct equipment to alert them in the event of a seizure.

This will be my third London Marathon. But I am a lot older, I completed it in 2000 and 2004, so 2020 has got me pounding the streets again at the worst time of the year dark, cold, wet and windy. So any support would be amazing for this charity and this Crazy Grandmother thank-you for reading my story.
Sharon Sly