My daughter Selina-jane has drug resistant epilepsy she was diagnosed with epilepsy when she was 3 and we are now just starting the ketogenic diet
We are fundraising for The Daisy Garland as they have supported us and so many other families with an overnight SATs monitor. They have given information and support on drug resistant epilepsy, treatment options, medication information and general compassion and care for our journey with epilepsy.
On International Epilepsy Day, Harper went to meet with a neurologist and 10 days later she was diagnosed with Childhood Absent Epilepsy.
We are a group of Y5 children who are walking 1000 miles to raise money for The Daisy Garland. One of our classmates, Jeri, is epileptic and we wanted to do something to support the charity who have provided her with a life changing sleeping mat. We want to show solidarity to a member of our class who lives with a condition that has such an impact on her life, but she deals with so admirably.
Raising money for who provided my daughter with her seizure alarm.
My son was diagnosed with epilepsy at the age of 2 with what felt like a lifetime battling through. It's heartbreaking to watch your child go through this and after reading Daisy's story it really touched home and we as a family who struggle day to day with this diagnosis cannot comprehend the heartache and outcome of your story, and this is why we choose The Daisy Garland as our fundraiser.
The Daisy Garland is a very special charity which changes the lives of children with epilepsy, and their families
For many years, Daisy Garland has supported my wife's nephew and his family with his epilepsy going above and beyond so many times. Because of Daisy Garland's amazing support for Gethin, I want to raise money so they can continue their vital mission and help other families who desperately need it.
This wonderful charity has been such a source of inspiration and support for our family, since we first came across the ketogenic diet as a solution for our daughter's drug-resistant epilepsy. On seeing how effective it was, my father became a staunch supporter of their work. So when he passed away in July I decided it was time to set myself a challenge, both to help the Daisy Garland and to honour his memory. This one is for both of you!
I am running the 2024 London Marathon in memory of Teddy, my cousins gorgeous little boy who tragically passed away just 1 week after his 1st birthday. 2024 is the year which would mark Teddy's 10th birthday.Teddy experienced prolonged seizures and on 19th October 2015 he tragically suffered a complex seizure which resulted in a cardiac arrest.
To help support families with children with epilepsy. If it just saves one family from going what we have been and are going it will be worth it. Every Penny Counts!!
The Daisy Garland had supported our family for many years, to which we are amazingly grateful for. So both of us have this opportunity to raise funds for them.