Joshua was diagnosed with Lennox Gastaut Syndrome in the summer of 2022. This was a very difficult diagnosis, and brought a lot of anxiety to our family.  Our neurology nurse advised us to link in with The Daisy Garland for support, and they have been wonderful.
Initially we received a very generous keto welcome pack with useful gifts for Joshua. I have also been lucky enough to receive a grant for a Daisy Garland SATs Monitor which will provide peace of mind at night. They also invited me to join a mindfulness course online which I thoroughly enjoyed and looked forward to every week.  It was also an opportunity to hear from other parents also experiencing similar issues, who "get it". What a wonderful, caring group of people who love kids like my Joshua. Feeling grateful.