"Dear The Daisy Garland,

My mummy and I wanted to say a very big thank you for the [night-time breathing] SATs monitor I was awarded a few months ago! It has been very reassuring especially as I’ve had a few seizures in my sleep in the past weeks. These are new and gave my mummy a bit of a fright but I’m extremely lucky to have my SATs monitor which tells mummy if my heart rate goes too high/low or if my oxygen levels drop. Mummy has noticed that these can be signs of seizure activity. So we are extremely grateful that these can be monitored!

We also want to say thank you for the ketogenic diet welcome box you sent me just before I started the ketogenic diet, everything has been so helpful and it definitely got me started on my ketogenic journey.

The diet is going well, there are lots of meals I enjoy and my seizures have reduced by about 50% 

We can’t thank you enough for all the help & support you have given us!

Love from, Nola and her mummy x"