My daughter Raya has a rare gene mutation called cacna1g, one of the symptoms of this mutation means she has suffered with seizures since the day she was born. All medications, ketogenic diet and vagal nerve stimulator have failed to stop her multiple daily seizures . 

Having the SATs monitor that The Daisy Garland have granted us means that we now have a 3rd eye, we can sleep better knowing that we will get alerted when Raya is having a possible seizure and respond much quicker.

I can not thank The Daisy Garland and their staff enough for the support I have received throughout the grant process, it really means the world to us x