First of all I cannot thank you enough for our Daisy Garland SATs monitor, it has been a god send, already we are able to see that Sean is struggling with his oxygen sats not just at night but right through the day as he is just in and out of seizures 24/7. We have also just had the news after his week in hospital last week for the video - telemetry that he is having lots of different seizures all the time and that he now has Lennox Gastaut Syndrome, rare severe and not a very good prognosis horrible type of epilepsy 😭 which is not what we wanted to hear and really does scare us even more 😔. The arrival of the monitor has been and will continue to be a lifeline for our Sean especially at night but now all through the day as well. We now definitely don't sleep because of this diagnosis and how many seizures he is experiencing!! But it is so important to us to be able to constantly check his numbers on monitor because Sean doesn't always present if there is anything wrong with him when indeed he is running low on oxygen and heart rate very high. So thank you, thank you, thank you to all involved with Sean being able to have this new monitor. 

Sean and family 💜💜💜