The Daisy Garland Charity:

The Daisy Garland is an award-winning charity working exclusively for children and families whose lives have been touched by complex epilepsy.   Set up in 2004 in memory of our daughter, Daisy, The Daisy Garland provide positive support for some of the 18,000 children and young adults in the UK who suffer from drug-resistant epilepsy. The help we offer is wide-ranging and life-changing:   

• we fund Daisy Garland Ketogenic Dietitians working in NHS hospitals countrywide;
• we give grants for life-saving epilepsy monitors; 
• Daisy’s Keto Café is our on-line round-the-clock parent support group with 700+ members;
• we offer vital one-to-one family support;
• and we award small one-off grants for special needs equipment.

Instrumental in bringing the ketogenic diet to the forefront in the UK as a treatment for drug-resistant epilepsy, The Daisy Garland work in collaboration with 15 NHS Trusts from Devon to Scotland, providing hope and support for some of the most vulnerable children in society.  Our work is hugely rewarding: we transform and save lives.

The Role:

The success of our charity has led to expansion and the need for a Development Director to join our small, committed team of 4 based in Totnes, Devon.  This exciting new role comes at a critical time for The Daisy Garland and offers considerable scope to the right candidate to expand our network of stakeholders and further raise our profile, ensuring clear growth and sustainability plans are in place to take the charity forward.  The Development Director will provide support in delivering the charity’s objectives whilst maintaining the individuality and personal touch which is the cornerstone of the charity; focussing on ensuring that future development is inclusive and respectful of the standards The Daisy Garland holds dear.   This position reports to the CEO. 

 

The position offers an interesting and varied workload:

 

• identifying and delivering new initiatives and areas of support for those with difficult to control epilepsy in collaboration with all relevant parties;

• Formulating and implementing campaigning and lobbying strategies for improved support for those with difficult to control epilepsy;

 

• Raising ketogenic awareness and positive outcomes through increased collaboration with NHS Trusts; 

 

• The confidence to represent the charity in public forums by being a passionate and empathetic advocate for the charity and its mission;

 

• Identifying and attending events to maximise collaboration and networking opportunities;

 

• Strengthening current corporate partnerships and developing new strategic partnerships using professional/personal networks;

 

• Forging collaborations with relevant charities and umbrella organisations;

 

• A sound financial understanding and demonstrable experience of managing budgets, business planning, delivering operational improvements and the delivery of monitored statistics demonstrating the impact of our services within the field of epilepsy.

 

About you:

This position requires a range of flexible skills.  Commitment to the vision, mission, aims and values of the charity is essential; along with compassion for and an understanding of the complexities of caring for children with special needs, disabilities and complicated health issues.  Good knowledge of the voluntary, social and public sector and the environment within which charities work is essential.  Ideally you will have had 2+ years’ experience in a similar leadership role with a proven track record of achievement. The willingness and ability to travel to Daisy Garland events and meetings when required is essential.

 

If you are a positive, motivated individual with hands-on experience in the charity/health sector, have excellent business development and organisational skills, with a keen interest in health and diet and possess the ability to work within a small, dedicated team helping children and families overcome great difficulty then we would like to hear from you. 

 

How to apply:

Please submit your CV and a supporting statement telling us what makes you an ideal candidate for this role to:  Sara Garland, CEO, at:  [email protected]   

Closing date for application:  18 March 2022

 

Benefits:

Salary band: £45,000 - £53,000 pa (depending on experience)

Hours: Full-time (37.5 hours) Part-time 3-4 days a week considered, pro-rata salary

Pension Scheme

33 days holiday per year (including BHs)

Based: Flexible between WFH and our Totnes Office