Hope

Hope has a Mitochondrial disease. She’s been on the ketogenic diet since she was three.  She’s now ten and has been seizure-free for over six years. I’ll never forget how kind Sara was in those early days. I spoke to her with desperation when we couldn’t get on any waiting lists to start the diet. Eventually we did get a dietitian at a hospital we were already under, but Sara had things in place that meant we would have got seen! She was there to support and send a parcel and thoughtful items - including a little notebook for mummy who was feeling rather overwhelmed by the condition and the diet. We’re totally rocking it now - but always grateful for the support we received in the early days.