The Daisy Garland have been an amazing charity for us with things from advice on the ketogenic diet, lovely gifts in the post to help us with the diet, help and support for all families that are going through this and even words of encouragement when, like all parents, you just need to know you are doing the right things. It is also lovely to be able to swap/share stories or tips with the other families and even the occasional cyber hug when things get really tough. Just having people there that know exactly what you are going through, so you don’t feel alone, helps normalise our crazy rollercoaster ride a bit.