Molly our beautiful daughter started having seizures at 3 months old

She has SCN8A a very rare genetic disorder, we were told

We watch her very closely every second of the day but it’s most scary overnight

We rarely sleep soundly, we need Molly’s cameras in our sight 

The Daisy Garland charity has funded a monitor to alert us if a seizure does occur 

This will allow us to to administer the emergency medication & call an ambulance to help her

We are more grateful than the Daisy Garland will ever know 

Having this equipment in place could save her life and allow us to watch our lovely wee Molly grow

She is the happiest wee soul and there’ll be tough times ahead 

But thanks to Daisy Garland we feel she’s much safer in her bed!