"Wishing the Daisy Garland a very happy 20th birthday. It is so bittersweet that we came across the charity after losing our own little boy Teddy to complex seizures at aged 1. Since Teddy's passing, the charity has given us a real focus in terms of fundraising to help others just like Teddy. We are grateful for the friendship of Sara and David and are so moved by their work after losing their own little girl Daisy. An absolute inspiration and a wonderful family. A real charity with a real purpose. 💜 💜 We will always support your work in any way we can xxx" - Nikki and Charlie G
"Happy 20th anniversary To Sara, Daisy and all the team. 💜 We’re so grateful to have your support for such a large part of Hope’s life and journey. I’ll never forget my first phone call with Sara when I was so desperate to get my daughter onto the ketogenic diet and it felt like it was a hard battle ahead. After the call with Sara I was reassured that if we didn’t get it through the NHS, we would get it somehow and I believed that. We did get onto the diet, and then were sent an amazing box of goodies. Hope has been seizure free for 12 years now and still on keto .We’re grateful for the ongoing support in many ways; we love the Green Shoots Project, and Daisy's Keto Cafe support group, and I’ve benefited hugely from taking part in the Mindfulness courses. Thank you." Caroline M
"Happy 20th anniversary to a charity so very close to our hearts 💜 The team and the incredible work you do… will never be forgotten overlooked or underestimated in the life you gave to Toby… to us. We are so incredibly grateful to you all for giving Toby the best chance of seizure freedom and quality of life when nothing else worked. The emotional support, kind words, the wonderful dieticians, the time dedicated to the fundraising and just simply the kind endless fight for possibilities you have given to many families will be forever deep routed in our family. You inspired our drive to keep going when things have been so desperately dark, and helped us celebrated the lighter days no matter how few. Congratulations to you all for reaching 20 years and thank you all, especially Daisy 🌼 the beating heart running through every family touched and supported by The Daisy Garland 💜" Em B
"Amazing The Daisy Garland is 20 years old. You provide a great service. Thank you." Praseeda P, Epilepsy Nurse - Hertfordshire.
"Happy birthday to the fabulous Daisy Garland! An incredible charity so perfectly strap-lined giving hope, that is exactly what they gave us. Hope that there might be a way we could do something to help our severely poorly child. Helplessness as a parent is absolutely devastating and for the first time in years we were able to help our son. I strongly believe that keto saved him and helped him through some potentially dangerous years. We will never forget that and I still speak so highly of the diet all these years later. Thank you and cheers to you all. What a remarkable gift you have given the world xxx" Heather P
"Happy 20th birthday The Daisy Garland! What an amazing achievement 💜 We will be forever grateful for your gift of Isabelle's SATs monitor. It has saved her life and given us peace of mind and sleep! You are an amazing charity that does amazing things. From the monitors to the help and support and the gifts Isabelle has received in the post 💜 Thank you." Lizzie G
"Happy 20-year anniversary The Daisy Garland! It is almost impossible to explain how amazing The Daisy Garland is. When things are at their darkest, when everything is overwhelming and the path you are on is lonely and frightening The Daisy Garland provides knowledge, advice, support and friendship as you navigate your drug-resistant epilepsy journey. Right from the beginning when we started the ketogenic diet, they provided the most amazing welcome box full of everything we would need to begin. The online support from Sara, David and the entire team is fantastic, and they are always quick to answer questions, offer advice and provide recipe ideas! The diet has given us hope and has had huge benefits to our daughter. For us, the family support and kindness has been immeasurable. The community they have built with weekly chat sessions, hospital boxes, giveaways and advice remind us we are not alone. We have been part of online cooking sessions as a family, have taken part in Mindfulness sessions focused on wellbeing and also been part of The Green Shoots project where our children have become part of a community of growers! They champion all of our children and give constant support when things are difficult as well as being there to cheer us on and celebrate successes. We are so very grateful for the life changing work that they do and the huge impact that they have had on not just our family but also so many others. We cannot thank them enough and feel very privileged to be part of The Daisy Garland family. xxx" Sarah LM
"Happy 20th Birthday The Daisy Garland you have supported so many of the families that I support as an epilepsy specialist nurse for children.💜 💜 💜 Thank you from the bottom of my heart for providing all your support and amazing resources. You save lives every day. 💜💜" Caroline L
"A wonderful, caring charity 💜 I have spent many hours chatting with TDG team… you really have got to know all the families on a personal level. Creating a charity in memory of beautiful Daisy… taking that painful part in your life & making something so wonderful.. a beautiful legacy! Daisy's Keto Cafe Support Group is such a knowledgeable place, there is always someone who can help you with any questions, doubts or worries! The Daisy Garland has been a HUGE part of mine and Tia's life 💜 Today (Nov 1st) is your 20 year anniversary, the 9th November is Tia's 3 years on keto anniversary 💜 I’m forever grateful for all that you have done for myself, Tia and all the other families who you have helped over the years 💜 Here is to the next 20 years xx" Chloe C
"Daisy Garland not just a charity that honestly saved us, but we consider you extended friends and family. We can never express how grateful we are to you and how you have helped and changed ours lives and supported us. I really don't know how I would have coped without you. You're all inspirational. All the help you give to so many people and how many lives you have made better. Thank you for everything. Thank you for being you. xxx" Tina P
"Happy 20th Birthday to the amazing Daisy Garland! Thank you for all your help with our children in the past and present. You rock!" Lin.M, Epilepsy Nurse - Huddersfield
"Many Happy Returns to a fabulous charity and a wonderful group of people. We are honoured to have been with you guys along the journey and played our small part in helping you to support so many families. All the best and warmest congratulations." Rob at Pulmolink
"Coming off anticonvulsant medication and starting the Keto diet was a life changer for Ava-Jane. We had almost a whole year of no seizures and, although they crept back, they were not as bad as pre-keto. We were so well supported by The Daisy Garland so THANK YOU, from the bottom of our hearts " Fo B
"Congratulations – what a fantastic milestone for everyone at Daisy Garland. Happy anniversary to you all x" Dani B, Ketogenic Dietitian, The Royal Berkshire Hospital
"Happy Anniversary. I am in awe of the power and dedication of The Daisy Garland charity. We will forever be grateful to you for providing a specialist dietician and enabling our son to try the ketogenic diet. Quite simply, without this chance he would have died from a combination of toxic drugs and seizures. Since he ‘awakened’ we have been sure to make his time with us count and build precious memories to see us through the darker days. The diet has been very hard work at times and required a lot of tweaks along the way but I am still convinced it is this which gives Daniel his quality of life and most of the seizure control. The absolute love and commitment you have poured into the charity which is the legacy to your precious daughter is mind blowing and must have improved the quality of life of so many children and their families. You have certainly fulfilled your motto of ‘a journey of hope….for children with epilepsy’. There isn’t a day goes by that I don’t think of you and give thanks to God for you. THANK YOU from the bottom of my heart xxxxxxxxxxxxxxxxxxxxx" Rosalind O
"Thank you for giving me the gift of sleep. Without the pulse-oximeter SATs monitor we were given 14 years ago, I would still be lying next to my boy at night. I was so terrified he would have a seizure and I wouldn't know, as my boy's seizures are often silent. Love to you all from the Page family 💜"
"Paul and I feel honoured and privileged to do a little fundraising for The Daisy Garland. We will never tire of telling people about the amazing work done by Sara and her wonderful team. We are very humbled by the parents we have had the pleasure of meeting who do so much to help other families and keep these beautiful children safe. Much love to you all x 💜 💜 💜" Janis A
"Happy 20th anniversary! What can I say… since Mason was diagnosed with epilepsy you were our lifeline, sending us the monitor that helped us through so many nights. When Bonnie was born sending the cute Daisy Garland T-shirt... Thank you again from the bottoms of our hearts 💜 xx" Tracey W
"Happy 20th Anniversary to The Daisy Garland. A charity we as a family are so very grateful for. Since Amelia was diagnosed with epilepsy in 2016 at just 4 months old, The Daisy Garland has supported us. We are one of the lucky ones to have had a funded SATs monitor, I am honestly truly grateful. Thank you & happy anniversary from me and Amelia 💜 💜" Lucie B
"Happy anniversary! We are so grateful for our SATs monitor, which gives us peace of mind and also for the support and Mindfulness course I was able to take part in! What a wonderful charity 💜" Lynne K
"Wow, 20 years, what a very emotional milestone for you all. I cannot begin to express what it has meant to Poppy, Alex and me to have the support of our Daisy Garland family. I will be forever grateful for your love and support and the amazing people we have been introduced to through you. From the first scary months, to the keto diet, night time monitors, gratitude boxes for hospital stays, Green Shoots....the list goes on! Your unwavering support for all the families is a credit to a wonderful charity set up in memory of a wonderful little girl xxxx" Kat R
"Happy 20th birthday to The Daisy Garland! It has been a pleasure to work with you for the past 10 years and see the wonderful work you do each and every day. Here's to many more years! " Thomas at Safety Systems Distribution
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"Congratulations The Daisy Garland on your 20th Birthday 🎉 you have done such great work for so many families and all in memory of your wonderful Daisy 💜 💜" Helen G
"Happy 20th Birthday to The Daisy Garland - keep an eye out for the post over the next couple of days x " Tia T
"Happy 20th Birthday The Daisy Garland 💜 💜 This wonderful charity has supported my little boy through not only his epilepsy journey & also through his brain tumour battle, but have also supported me as a Mummy to learn to live life everyday with the worries that this journey has given. The wonderful Mindfulness courses have taught me to remember to breathe and enjoy the here and now - hugely important skills especially in a life that revolves around constant worry. I am truly grateful for all the support, care and love you have given my family 💜💜" Nicci R
"To Sara and all The Daisy Garland Team. I have no words that can truly explain how you have pulled us through the worst and beyond. 20 years giving people hope and a lifeline with a true understanding. Beautiful Daisy would be proud. A huge Thanks to you all xx" Liz G
"Thank you so much The Daisy Garland for all your support, Oliver’s been on the keto diet for 7 years and he’s doing so well 💜 xx" Jennifer Mac G
"The Daisy Garland massive congratulations on this milestone! Happy 20th! What would we do without you? So pleased we made initial contact all those years back and have been so well supported over the years. From our first initial night-time monitor, to attending events over the years. We have made many wonderful friends and continue to love to raise funds for our favourite charity. Well done Sara, David and you lovely team of ladies xxx Love to you all xxx" Leila B
"Amazing Charity. You have gone on to help so many families following the loss of Daisy and are truly amazing and so very caring. Lovely to see you Sara and David at Teddy's Ball.You are a true inspiration to all around.Thank you for all you do 💜 xxx" Carole G
"Many happy returns 💜 Serenity has a rare disease and very complex needs including drug-resistant epilepsy. The Daisy Garland is without doubt the most beautiful and supportive charity we have been involved with through her journey over the last three years. We thank you from the bottom of our hearts for our sats monitor, support, and all you do for all the warriors and their grown ups 💜 💜 xxx" Michelle SB
"I am a mum of a warrior only been known to Daisy Garland for few weeks but the love and support from them has been amazing. Truly blessed to have them support us through the keto diet 🥰 😍" Keriann B
"TDG is a constant, supportive, gentle guiding hand at your back 24/7. The help is immeasurable and they are there for every battle and celebration no matter how big or small. THANK YOU TDG X💜X" Nikki S
"I truly believe I wouldn't have had 14 wonderful year's with Blisse if it wasn't for your SAT's machine. Epilepsy is devastating and took our beautiful girls from us. To grieve and put 20 years of dedication to such a life-changing charity is amazing/ Daisy will be so proud of you all 💙💛💙💛" Laura M
"We will always be grateful for the enduring support from the wonderful Daisy Garland team. You gave us hope in the early days when keto was new to us, you sustained us when the going was hard, you held us in your hands at the end of Erika's journey and continue to support our whole family as we move forwards. Daisy's legacy continues and we will never forget the beautiful little girl who has helped so many children in the past 20 years xxx" Bryony McD
"Happy 20th Anniversary, your support has meant everything to us xxx" Julia D
"We found The Daisy Garland through a colleague in 2017 when we were devastated by a rapid onset of seizures that saw us hospitalised for months on end feeling lonely and not knowing which way to turn. In those dark early morning hours they were the support I needed to get through the hell that had unleashed on our lives. Sara was always at the end of my messages listening and supporting me. When we went onto keto the community of parents and help advice and support was unwavering. We also benefited from a SATs monitor which for over 3 years ensured we were alert to the devastating seizures and I’m sure saved our son’s life on more than one occasion. Then in the midst of lockdown I was able to attend their Mindfulness course, that hour once a week over 6 weeks taught me to breathe to be in the moment to take a minute for me and not feel guilty about it…chocolate Mindfulness is still my favourite of all time and brings me peace all these years on! Amazing work Sara Karen and everyone and congratulations on 20 years of support xxx" Charlotte PJ
"Happy Birthday to The Daisy Garland! A huge thank you from all of our family, you are such a huge caring support and the help we received from you when we have been through the scariest times, and then to the help and support you provide to all of us through the diet and way more. Your support group is such a caring place and wealth of help and information. We love you all from the bottom of our hearts. Thank you so very much 💜 💜 💜 xx" Zoë D
"Happy 20th birthday! 🎉🎉 You supported my son when he was following the ketogenic diet by providing equipment and by funding his dietitian. You have supported me as a parent by offering Mindfulness courses and by your wonderful Facebook page. You are wonderful and I am in awe of what you have achieved and what you do to support families like ours! 💜 💜 💜Thank you! X" Joanne MB
"Many Congratulations on your 20th anniversary. What an amazing achievement, you are all incredible for the work you do. My relative is on the ketogenic diet and is doing really well, all thanks to The Daisy Garland. 🎉 💜" Julie M
"So glad we found your charity. The support is amazing and I love how you are also there for us parents and help us by providing Mindfulness courses. It really does make a massive difference. We love fundraising for yous and this year makes it even more special with it being your 20th birthday today and it’s our fundraiser tomorrow 💜 xx" Vicky QR
"For this muddling-through mum, The Daisy Garland has been like a comforting, quiet friend; always in the background and always ready to support. Eight years ago we had a monitor and then support through the life-changing keto diet. Now our daughter is more stable, we really focus on the positives 💜 Izzie loves the outdoors and has benefited from the Green Shoots project, always so excited to have her own post! I loved taking part in the Mindfulness course as it was perfect in the lounge or my daughter’s room feeling like there was a wonderful support network who just understood! I still think of some of the wonderful nuggets from Gillian now! So many kind gestures and one of loveliest teams of people! Happy 20th birthday 🎉 Please eat cake and give yourselves a huge pat on the back!! Xxx" Annie B
"Happy 20th anniversary to The Daisy Garland 💖 💜 We are beyond blessed to have your support with Corey's epilepsy journey.The kindness you have shown means the world to us. Xx" Gail G
"Happy 20th Birthday The Daisy Garland 🥳 🎉 My son was diagnosed with Doose syndrome almost 6 years ago and started keto straight away. We were told about The Daisy Garland and more specifically about the Keto Cafe. Many many times over the years has the Cafe and the wonderful parents, carers and Daisy Garland team have offered support, encouragement and a shoulder to cry on. For us it was a realisation that we are not alone however lonely epilepsy and keto may feel at times. From my whole family THANKYOU THANKYOU THANKYOU!!! 🥰 💜 🥰 Here’s to the next 20 years xxxx" Cara O
"HAPPY HAPPY BIRTHDAY! All the posts and comments show what a truly inspirational and life-changing charity The Daisy Garland is. I feel honoured to be part of your group providing Mindfulness courses online to our amazing community. Sending love and huge congratulations to Sara, David and all the team. x" Gillian H
"Happy birthday to Daisy Garland, such a wonderful charity, Thank you for being so special and supportive xx" Sally W
"Wow 20 years of The Daisy Garland! What an incredible achievement! Happy Anniversary and thank you so much for everything you have done to support me and Annabelle these past 3 years. We have benefited so much from being part of this incredible community and are so thankful everything the charity has done for us. Sending you all lots of love and thanks xxx" Hannah S
"Happy 20th Birthday to the incredible Daisy Garland We are so grateful to have your support and love throughout this unpredictable journey of epilepsy. Taking something so tragic and turning it into something positive and to help others is just so beautiful and you and David are so incredibly strong. We can’t thank you enough for the monitors and the ongoing projects you create for parents and to have the support from other parents is so wonderful. Daisy Garland thank you so so much for the ongoing love and support, congratulations on 20 years " Gabrielle E
"That’s amazing! Huge congratulations " Sandra Middleton
"Sshhhh… shouldn’t have a favourite charity BUT we do! We can’t even begin to comprehend the pain that loosing beautiful Daisy caused her family. But what a special little girl she was and still is. Charlie … my first grandchild was my pride and joy. He made my heart sing. So when epilepsy affected him we were devastated. Only people directly affected by childhood epilepsy fully understand the never ending anxiety. We all have different journeys but have all been supported in so many ways by this wonderful charity. Charlie’s night time monitor kept him safe and meant that my daughter and son in law could snatch some sleep. We all know that sleep is over rated !! but it helped with the stress and hospital visits and paramedics and ambulances. Charlie is now a loud, bubbly 13 year old and we will never stop being grateful to The Daisy Garland Charity ..our favourite charity !! And every time Charlie makes me smile I think of the beautiful Daisy xxx" Clare D
"Congratulations The Daisy Garland. A beautiful milestone and achievement! We first was recommended to get in touch with the charity when AJ was 3 years old and just about to start the diet after unsuccessful trials of medication to control his head drop seizures.The community of families which the charity bring together virtually is amazing. We’ve popped on the page for advice; joined in The Daisy Garland Keto Café to say hello; entered competitions and even won a few! We’ve also been a lucky family to be granted with a monitor which we have for AJ. This charity has truly been the best support system for our family with our Epilepsy journey with AJ.AJ isn’t on the keto diet as his seizures have been controlled by medication just before we actually started and it’s going to be 2 years for him being seizure free.Thank you The Daisy Garland for your support and we wish you many more years!" Zee S
"The Daisy Garland gifted us a grant for a monitor for our daughter with drug resistant epilepsy. Without it we wouldn't have known our baby was having a bad fit and we're forever grateful to them I hate to think where we'd be without them and all their support when on keto and even since stopping it. Truly a wonderful charity " Georgie W
"Congratulations to you all, without your help we wouldn't have been able to have a better night sleep without the sleep monitor you provided for our son. Thank you and may you have many more years supporting families like us xx" Samantha A
"Happy Birthday The Daisy Garland 💜, always in our hearts and forever grateful! Nine years ago you changed our lives providing a bed alarm to help keep Matilda safe while she slept! The Keto community you created guided and supported me to ensure this journey was a success. As a result I could also help others and share recipes to keep our warriors tummies full and happy. Thank you " Karen D
"Happy 20th Anniversary. The help and support you gave our family will never be forgotten. Right from the beginning of my sister Ellee’s Epilepsy diagnosis 13 years ago, you was there for us all but especially for my mum. We still celebrate Epilepsy Awareness Day every year wearing our Daisy Garland T-shirts . Keep doing what amazing work you do. Forever Grateful.The John-Baptiste Family"
"💜 We'd like to send our huge purple heartfelt wishes to you all for a very Happy 20th Birthday to The Daisy Garland. Thank you to the amazing team at The Daisy Garland for all your incredible support, for us it's been since Autumn 2015 when we were so desperate for help and the ketogenic diet was our last hope. You're truly inspirational and making such a difference to the lives of so many children with drug resistant epilepsy, their parents and families. Chloe's 18 now and we knew nothing about epilepsy until her first seizure at 9 months. It's been a very long and painful journey with numerous desperate moments and the unknown. We will always be grateful for your support with the improvement that the ketogenic diet has provided for Chloe. From funding Daisy Garland welcome boxes, to sats night time monitors, keto dieticians to the DG keto cafe, from Green Shoots to Mindfulness, the support is always immense. We've met the most amazing and inspirational people along our journey and continue to do so. A heartfelt thank you to everyone. Daisy will be so proud of you all and what you've achieved Sending our love Bridget, Neil, Chloe & Chloe's Nanny Pat xxx"
"Wishing The Daisy Garland a very Happy 20th Birthday. A wonderful charity that has been a huge support and comfort to Nikki and Charlie Grant , my nephew and his wife following the loss of their darling son Teddy . They have gone on to raise many thousands of pounds in the last 9 years to help other families. It was a pleasure to meet Sara and David at Teddy's Ball. A truly amazing charity and I hope we will be able to continue to help fund raise for this charity " Pam O
"Wishing The Daisy Garland a very happy 20th birthday. You are such an incredible caring loving charity. We found you when Curtis was diagnosed with Dravet Syndrome in 2017 when we were lost in the midst of this heart wrenching diagnosis. You kindly gifted us the SAT's monitor which has helped me sleep much better but also to keep him safe on days when he is poorly it's been a lifeline and we could never be without it. We did try the keto diet unfortunately it was not for him but you guided us gave us a welcome box and when he had to have his operation to fit his feeding tube you gave us a gift box for him and me to keep us busy and occupied whilst in hospital - it's those little things that mean so much to families. Your kindness is endless and the daily Facebook updates and positive posts kept me going through our darkest days. Daisy is never far from our minds and what a charity that's been created in her memory. That's why we will always continue to help raise funds for you. Well done Sara and team. Lots of love and thank you xxx" Emily DA
"I’ve been on this journey for 15 years and so grateful to have found Sara and The Daisy Garland back when my son was diagnosed with epilepsy. Sara’s support meant the world to me as I felt completely powerless to support my son. Thank you so much for everything you did for us back then and congratulations on 20 years of supporting families in need of support and guidance xxxx" Toni P
"Biggest birthday wishes to the most beautiful charity in the world. We are forever grateful for the support you gave Jess and our family when she was on the ketogenic diet. Your love and care is so deep and just beyond anything we have ever experienced with a charity and it's just so amazing that you still stay in touch all these years later" Lindsay G
"Congratulations to this fantastic charity, thank you for all the help with my family and all the other families you’ve helped you are AMAZING " Lynette B
"Wow 20 years old! Amazing! To The Daisy Garland team, Happy Birthday. I would like to thank you for the amazing support you give not only my family but the many other families you support. You have helped so much on our keto journey! You are amazing! Keep doing what you do! Keep the community you have created together! we will all also continue to support your great cause! Amazing charity and on to many more years of support " Charles B
"Happy 20th birthday to a fabulous and very caring charity. To have received a sats monitor to provide overnight monitoring for Jack, who has difficult to control epilepsy was amazing and we consider ourselves very fortunate. The sleep gained from the reassurance of the monitor has been life changing. To know we can sort Jack straight away when it alarms has given so much peace of mind. As the years have gone on, it's more than just having the peace of mind we can react to the alarm when it sounds, it's ensured we more accurately monitor the seizures which may have otherwise been missed overnight, it's ensuring we can provide first aid if needed, it's enabled us to be more proactive as it alarms... so can quickly get the urine bottle rather than Jack need a shower and the bed need a full bed strip down and clean. And such a lovely, caring family who have set up this amazing charity that actually (and unfortunately) do fully understand." Lesley T
"Congratulations to The Daisy Garland on your 20th Anniversary! We are so very lucky and grateful to have you in our lives! You have personally supported my family for 11 years now - when my son first started the ketogenic diet to try and reduce his seizures. We instantly went from feeling alone, bewildered, overwhelmed and very uninformed to feeling part of one big connected family. We learned sooooo much about epilepsy, medication and diet. We felt so supported and the diet and weaning of medication helped to bring my son back to life. It was such an important part of our journey and we became very informed parents. We were also lucky enough to receive an epilepsy alarm which helped to ease our worries a little overnight. More recently, the Mindfulness courses I attended were an absolute godsend in helping me to cope and get through the anxiety I faced when my son had major brain surgery for his seizures. I honestly don’t think I would have got through this incredibly tough time without applying what I’d learned and the support and understanding of other parents. I still use it to cope with everyday challenges! This has made such a difference to my life! It was so lovely and incredibly kind that you still thought to include me in this even though we were no longer doing the ketogenic diet. We are involved with several charities but it always amazes me just how personal and thoughtful your support is - your ongoing kindness, thoughtfulness and consideration just always shines through. It’s like having a friend that you can always turn to I’ll never forget the lovely balloons you sent my son in 2015 to cheer him up when he had been in hospital poorly! You truly are incredible! Thank you so much. We wish you many more years of success because you truly make a difference to so many children and their families. " Amy C
"Wow 20 years Happy 20th birthday to the amazing daisy Garland 14 months ago we was introduced to TDG as we started our wonderful keto journey, instantly you made us feel so welcomed into this amazing community you have set up to help families like ours. The warm welcome, the fabulous starter pack when we was very much clueless gave us an amazing start The constant support from yourself and giving our families a support network that we all need and very much rely on. The fabulous give aways boosting everyone, the Sat's monitors, Green Shoots project all amazing ideas and so thoughtful The daily motivation/ meaningful posts you put up make me smile and think yes we got this Your work is fabulous and you gave my beautiful Georgia her smile back and her life back and I'll be forever grateful to you all for that we was in such a desperate place and now we are getting my girl back bit by bit we can never repay you . Keep up the amazing work you do and thank you, thank you, thank you for everything love from Me, Georgia & our family " Luanne R
"Happy Anniversary!! Congratulations on all you have achieved. Finding you all in those early days with Keto was a wonderful life line….. a total godsend! I never would have survived keto without you all. Thank you xxx" Amy G
"We share a birthday happy birthday Daisy Garland. Your care and work for children suffering with epilepsy is invaluable x" Emma B
"From Grace's diagnosis almost 7 years ago and all the support since then, we will always be grateful for your kindness and love. You've made such a difference to our lives and many others...Happy Birthday The Daisy Garland " Lou A
"20 years - to think of all the years you have helped add to children’s lives. You truly are compassionate and caring and certainly help me feel less alone. Thank you 💜 " Bobs B
"Happy birthday In Jan 2017 my 3 year old boy's world was shattered! He had a tonic clonic seizure In The middle of the post office out of the blue. He was diagnosed with complex generalised epilepsy. Seizures came thick and fast day and night! The Daisy Garland was there for us in our darkest days! They provided my son with a seizure monitor for under his mattress and meaning we could get a wink of sleep knowing it would alert us! The Daisy Garland did more than that though! They provided a beacon of hope and support, a safe place to learn and not be alone! The care package they sent when he had an operation brightened his day!… I was so thankful for all their help and honestly hope that others find comfort and help from them just being amazing! Thank you so much!!! Ethan is now 10 and thriving he has epilepsy but epilepsy doesn’t have him! THANK YOU AGAIN AND MANY HAPPY RETURNS!" Emma LF
"Happy birthday to The Daisy Garland. I feel it is only right to explain what the Daisy Garland has done for us in Evie's words. 2 years ago she created a video. https://vm.tiktok.com/ZGdLjHpAW/ Without The Daisy Garland and its members we would of been lost, starting the journey on the first day of lockdown was perhaps not ideal but it gave us time as a family to experiment and adapt. When our dietician wasn't available The Daisy Garland family was there to lend a helping hand. Evie is now excelling at dance and reaching for her dreams. We are forever grateful" Lisa P
"We can’t thank Sara, David and the Daisy Garland team enough for the most amazing gift that they gave our family. Our son Jack was diagnosed with Lissencephaly (smooth brain) when he was 5 months old. As with most brain conditions, this one is accompanied by medical resistant epilepsy. We were advised that Jack’s development would be severely delayed, but it was absolutely heartbreaking to see any tiny achievement undone by his seizure activity. At 4 years old, Jack rarely smiled. And then we were told about the Ketogenic diet and introduced to The Daisy Garland who funded the wonderful dietician, Nicol Clayton, who provided advice, encouragement and invaluable support. Within a short space of time, the diet worked its magic, Jack’s seizure activity reduced significantly and he didn’t just smile, he giggled! Imagine the reward of joyous, heart warming giggles delivered unconditionally by a toddler who is thrilled by the splashing of water in his bath. Imagine how incredible that is for parents to hear after 4 years of trying with immense difficulty to accept that this would never be possible. Jack is now 17. A lot has happened in that time and The Daisy Garland has always been there walking by our side, offering much needed advice and kindness. Epilepsy hasn’t gone away, but neither have Jack’s giggles 💜 " Maxine W
"Happy Birthday! 20 years wow! It was such an incredible honour to be a Daisy Garland Dietitian and to be able to work with the wonderful families with children on the ketogenic diet. It is fantastic to see how much progress has been made over the last two decades and how many lives have been changed. What has never changed is the love, care and sense of community you provide. Have a wonderful day celebrating Daisy and everything that has been achieved " Nicol Clayton, Daisy Garland Ketogenic Dietitian, Bristol Children's Hospital.
"Happy 20 years Daisy Garland Wow - what an amazing achievement!! We are forever grateful for the support, care & love from this wonderful charity The most amazing “ fairy godmother” aka Sara - where would we be without you you work so hard for all our children / young adults having all these amazing dieticians working within the NHS in administering prescription keto to minimise hospital admissions. Mindfulness for us parents has been an absolute godsend in helping me live in the present moment & to learn how to Breathe……Green shoot project is awesome reducing anxiety and just being outdoors. The “hugs in a box” that Joni’s received whilst in hospital have been so lovely & thoughtful & everything you need - little night light, tissues, pad & pen, hand cream the list is endless The friends we have made along our epilepsy journey are the good things that come out of the bad situation. We are forever grateful!! The Balls in London AMAZING !! The best thing for me is having made the most special friend who is always there - Always thank you for you friendship Sara Here’s a little toast to Daisy Angel fly high darling girl your name lives on in all our hearts xxx" Debbie H
"A wonderful charity supporting our gorgeous grandson, Drew, and family for many years. We love supporting our daughter Leila and family with her fundraising events and London marathons " Carol A
"Happy 20th birthday to The Daisy Garland! What an amazing thing you have created. To turn your personal tragedy into a charity that benefits so many families, is truly incredible. Without your support, Charlotte, and our family would not be where we are now. Which is happy, healthy, and looking to a future where anything is possible! " Jo F
"We are a family that benefited from a epilepsy monitor for our daughter. We are so immensely grateful for this amazing equipment that meant that Ruby was safe to sleep while we all slept at night. It meant that there was no more night shifts to check on her. It was honestly life changing for us as a family. We were so thankful, I have gone on to fundraise for The Daisy Garland through my work, so other families can keep benefitting from all their amazing services, like we have! Happy 20 years xxx" Tracey W
"Happy 20th Birthday to The Daisy Garland. So thankful for all your support with Deanna over the years. You gave Deanna her epilepsy pillow and seizure bed alert. Your ongoing support with Mindfulness courses to help have some 'me' time, and find time to be in the present has been a lifesaver in times of immense stress and worry. I can't say thank you enough. Xxxx" Cindy S-F
"Thank you for all the support you have given me and my family over the years. Our family dynamic is pretty complex with 3 of us with Epilepsy and related neuro issues. Plus myself with Cancer. Thank you for all being there for us and for your kindness and understanding. " Marie J
"Daisy Garland has helped 2 of my close friends and I can't thank you enough. We cannot cure but we can hope and find the positives for our little warriors to live as wonderful a life as possible " Sarah S
"Daisy Garland has been amazing, they donated a monitor to my boy Alfie- jay who has tonic clonic seizures of a night, and it has been a godsend, don’t know where we would be without it. Thank you for all you do to help raise and spread awareness and donating equipment to help all our babies, you are amazing xx" Samantha K
A message from Vicki Whiteley our Daisy Garland Ketogenic Dietitian at Royal Manchester Children' s Hospital: "Happy Birthday!!! This is amazing!!! I am sending lots of love and will be forever grateful to The Daisy Garland, as will the families you support "
"Happy 20th anniversary! After months of research and disappointing news from other organisations, I was drawn to Daisy's lovely face 12 years ago without knowing her story. I sent a formal enquiry and couldn't believe the personal responses full of hope and caring advice I received from Sara, which led to the monitor, keto advice and treats during hospital stays. Thank you for creating this safe and inspiring place we all come to. Thank you for celebrating good news and providing the best support during bad times. I hope you all feel appreciated today and always xx" Diane B
"Happy 20th birthday The Daisy Garland Your charity absolutely changed our lives! The monitor we were awarded meant we could finally sleep through the night after years of not daring to. It’s alerted us to many of our son’s seizures which have required hospital treatment. We will be forever grateful." Natasha R-B
"Happy 20th Birthday The Daisy Garland. Ketogenic diet has saved Alfie's life, Thank you! Your support, knowledge, resources, the dietitians involved... it has been a life saver forever grateful for The Daisy Garland. Alfie is 2 years on keto and 2 years tonic clonic free. " Laura R
"Happy 20th Anniversary The Daisy Garland . Thank you for all your support that you have given to Chloe & Tia. Plus all the families you have helped in so many ways over the years. You are a wonderful, caring charity. Keep up the good work, and a big thank you to you all for everything you do. You are all amazing Here’s to the next 20 years xxxxx" Anne R
"Happy Anniversary. So much love xxx" Linda G
"Happy 20 years The Daisy Garland! The kindness and support you have given to our family is beyond words. From offering support during the darkest days of hospital admissions when we thought the nightmare would never end, to supporting us with the ketogenic diet, caring for our mental health with Mindfulness and getting the whole family involved with your Green Shoots project. If George hadn’t started the diet when he did I honestly don’t know what things would be like now. It breathed life back in to him and gave us our little boy back. This is down to unwavering dedication of Sara and David, and all those at The Daisy Garland, championing the diet as an effective treatment for drug resistant epilepsy, getting dietitians into UK hospitals and thus making this miraculous treatment widely available to children in UK. You have given back hope to so many families and changed so many lives. The Daisy Garland is infectious - once you have known them and know the huge amount of good they do, you just can’t help but to tell everyone about them and try to raise funds so they can continue their vital, life changing work. Thank you thank you thank you from the bottom of our hearts xxx" Ella M
"Happy 20th anniversary to an amazing charity The Daisy Garland. You are simply a wonderful group and it is plain to see how many families you have touched and helped over your twenty years. Seeing all the comments here just brings it home how much you mean to, and have supported, so many families and to their children. Here is to another twenty " Andy Y
"Happy 20th Anniversary! We are grateful for the support we’ve received in many different ways… the SATs monitor, the chance to network and meet other families, and the feeling that we are not alone on this journey x" Ruth C
"Such a wonderful charity that as a family we have been proud and privileged to support. Congratulations on your 20th birthday, here’s to the next 20! 💜 " Lucy A
"Such an amazing charity! Help us so much with recipes and ideas! And Daisy's Keto Cafe is amazing for tips and exchanging advice! A huge support all round couldn’t do keto without you! Happy 20th anniversary " Jenny H
"Happy 20th anniversary The Daisy Garland I honestly don’t know where we would be today without you. Teddy is a much happier and healthier little boy who now spends his time at home instead of in hospital thanks to being on the ketogenic diet which was made possible by the amazing work you do. I am also a much better Mummy thanks to your ongoing support not only with the diet and disability parenting but with life in general. The Mindfulness courses have been a huge part of improving my mental health and the Green Shoots project has been such a lovely way for our whole family to enjoy a hobby together. You are all fabulous, Thankyou Thankyou Thankyou always x x x" Lauren B
"20 years of making a difference to so many families! I can’t convey our gratitude to you enough. We feel honoured to have you by our side through out this journey. You’ve picked us up when we are down, offered advice when we’ve needed it and cheered our success. The little things you do make a huge difference and bring smiles to faces and warmth to hearts. When we started the diet I honestly thought I’d lost my little boy he was reduced to a shell, we started the keto diet with a lot of trepidation and hope. The Daisy Garland boosted our spirits with a fantastic Welcome Box and have just made us feel like we aren’t alone, sharing recipes, competitions, giveaways, cookery demonstrations, Green Shoots, hospital boxes, weekly chats and so much more. You supplied us with our monitor which transformed night time for us being able to sleep! We are still on the journey and diet, my boy is back with a big reduction in seizures. A big thank you for all your support, the work that you do is so inspiring and such an amazing way to honour the memory of Daisy Garland. Thank you xxx" Helen T
"What an amazing 20 years. We have made a huge difference to children and families . Long may it continue. 🥰 " Sarah C, Daisy Garland Trustee.
"Happy birthday The Daisy Garland, you have supported us through the journey of keto and still support us now we're off the diet. Through you I've joined with lots of fabulous other parents and don't feel so alone anymore and I know if I have an epilepsy question I can ask here. Thank you to keto chef Derek too and the inspiration that he's given many of us xxxxx lots of love from me and my family and also my young lady, bean xxx" Claire EJ
"When my daughter was 1 years old my life was turned upside down as she was diagnosed with epilepsy. I slept on her bedroom floor for 2 years until I was introduced to The Daisy Garland who kindly provided my daughter with a monitor. After that I had more peace of mind so I was able to sleep in my own bed knowing the alarm would alert me if my daughter needed me. My daughter now has drug resistant epilepsy, inoperable, and has many more complex medical needs. She is part of the Daisy Garland Green Shoots project and really enjoys participating. Daisy Garland also provided support through our keto journey, which unfortunately did not work for my daughter, but they supported us along our journey... The Daisy Garland have been my rock to speak to when I need them. They are such a rewarding and supportive charity who we donate to. Thank you to Sara and her team for supporting us now and in the future. HAPPY 20 YEARS ANNIVERSARY " Sarah H
"Happy 20th anniversary to you! I think if you (and you probably don’t remember this)…but if you hadn’t messaged me to encourage me to use your keto support group at the start, I would never be where I am now. I was so timid with these things and felt so inexperienced and my questions stupid! You encouraged me to use Daisy's Keto Cafe and I did, where I found invaluable support from other parents all the way along this confusing and chaotic journey. Plus all your personal support on weaning and keeping my nerve with meds. Plus the monitor which made such a difference. All of it makes such a huge difference to us all. That’s the impact of this group. I will be forever grateful for all your support. xx" Tracie U
"The Daisy Garland charity is just amazing and gives many families a lifeline of support. They provided a monitor to us for Natalia and we used this every time she went to sleep. It had saved her life on so many occasions. Not just from a seizure either. Her monitor showed us that she was extremely unwell we attended hospital and Natalia had septic shock. She spent 5 weeks on life support. Without The Daisy Garland and the amazing work they do we wouldn't of been able to create the memories we had. I would also like to add not only do they provide support like this but even after the unthinkable. Natalia lost her brave battle in July and again as always The Daisy Garland was there. Yes all the support beforehand meant we had Natalia for that little longer but the support after was just as important. We will forever be grateful to you and will always have a place in our hearts. xx" Gareth A
"Happy 20th Birthday and thank you for your constant support for us families navigating the world of epilepsy and the ketogenic diet xx" Hayley J
"Daisy Garland have funded both Ketogenic Dietitian and Dietetic Assistant posts over the years at The Oxford Children’s Hospital helping countless families. We can’t thank you enough xx" Ruth Fisher, Specialist Paediatric Ketogenic Dietitian, Oxford."
"The Daisy Garland is a fantastic charity that provide night time monitors to allow parents/carers, some degree of peace of mind at night, support and advice for families on the ketogenic diet, Mindfulness sessions, the Green Shoots project, Time4Me coffee and chats. As well as all of this, they are an extended family to parents and carers of children who have epilepsy. They are a safe space to be listened to and supported by the amazing team at The Daisy Garland and for families to support each other " Louise S, Epilepsy Nurse - Bristol
"This amazing charity was there when we were in the depths of despair. Nikki, I don’t know how I would of got through without all your help and kind words xx Happy 20th Birthday The Daisy Garland thank you for all you do xx" Joanne H
"So lovely to read all these comments. At the start of the pandemic we found ourselves facing an epilepsy diagnosis. We were absolutely terrified about what it would mean for our family and felt so isolated both in terms of a lack of local support but also the pandemic preventing much needed family support. When we finally stumbled across Sara and The Daisy Garland it honestly felt like they scooped us up, gave us a massive hug and helped us to bravely step forwards with a glimmer of hope that we could manage this life changing diagnosis. We were lucky to be given a SATs monitor which took enormous pressure off us and allowed us to actually sleep. We haven't accessed the keto diet but if the need ever arose we feel informed and know we would be supported well with this too. This small charity is doing amazing things. We are proud to give back just a little and to see friends and family doing the same. Thank you Sara and team, you are all so appreciated xxx " Alice C
"Happy 20th Birthday to The Daisy Garland your support has been incredible and we would have been lost without all the help and advice so thank you so much xx" Samantha O
"Happy 20th anniversary to the The Daisy Garland charity and the fabulous team behind it. We have been lucky enough to receive your support for over 10 years in different ways - critically through the charity funding the NHS Dietician who enabled us to try the ketogenic diet for our daughter, but also in so many other guises, through lending a supportive ear on the phone in the early days, to enabling us to meet other families in a social activity, to me as a mother getting help to manage my own stress levels through joining the Mindfulness course and coffee mornings. Sara, the support that you and the team offer is so heartfelt, nurturing and helpful, thank you. I will always feel truly grateful as well as in awe that you and David managed to channel your own grief and terrible loss at losing your precious Daisy into helping so many families through the pain, trauma and worries that epilepsy cause. Thank you! Xx" Hannah F
"The Daisy Garland is an amazing charity. They have created a safe and considerate community for children whose epilepsy is complex. There is no judgment and no stupid questions. Congratulations on 20 years and here’s to 20 more!" Hollie T
"Happy birthday to The Daisy Garland It’ll be the big one next year, how exciting. I would like to take the opportunity to thank the charity for the amazing help and support that you give families in our care but also the support and guidance that we receive as professionals. It is invaluable. Keep up the amazing work and enjoy the celebrations " Laurie.B, Epilepsy Nurse - Liverpool
"Happy 20 years of being heroes. You have helped our family in so many ways. Your help with Hugo and his sleeping monitor allowing us to get some sleep in the knowledge our boy was safe. Your help and support with Faith and her ketogenic journey. Always a safe place to chat about any concerns, pick up tips and to share in other children's journeys you have supported. The Daisy Garland has created a little community to support many beautiful brave children. Well done The Daisy Garland crew. Daisy is watching and is so proud of you all " Angela H
"What does the Daisy Garland mean to us? Where to start. It means we feel less alone. Every day since we entered this overwhelming and often scary world of drug-resistant epilepsy The Daisy Garland has been by our side. Incredible support with practical things like the ketogenic diet and a safety alarm. But as the charity is rooted in lived experience, the emotional support has been exceptional. Connecting us with other families, Mindfulness courses, support boxes when we have been in crisis and always listening ear. The Daisy Garland is life changing and Sara and David are an absolute inspiration." Sharon L
"Happy 20th Birthday you have supported in so many ways over the last 11 nearly 12 years from the bottom of mine and Mark's heart thank you to you all. We have benefited from the amazing generosity of a SATs monitor, Mindfulness training and support, but most of all being there on the other side of the phone, messages You’re not just a charity, we feel you are our family. Through the dark days and the good days you have always been there you have opened up your arms to us made us feel welcome and loved. The amazing support and knowledge from the Dietitians for the ketogenic diet the diet that saved our daughter's life we will be forever grateful. Happy birthday to you all. I hope you’ve all had an amazing day xxx" Joanne G
"Happy 20th Birthday The Daisy Garland In 2017 our world was turned upside down when a 2.5 month old Nola started having seizures. A month later she received a probable diagnosis of Tuberous Sclerosis Complex and we were told it was likely she would have refractory epilepsy. After gaining control of seizures for relatively short periods of time we eventually enrolled on the KIWE trial a few months before Nola turned 2. We received our Daisy Garland starter kit before going in to hospital which was just wonderful, all the essentials to get started on the ketogenic diet! Having doubts and worries I would read posts on The Daisy Garland Facebook page, website and closed Support Group a source of support where I could reach out and ask questions to others on a similar journey. Nola was also granted a SATs monitor some time before starting the keto diet which was a huge reassurance after Nola experienced several non- convulsive status seizures. Thank you for everything you have done and do to support families on their epilepsy/ketogenic diet journeys! You are amazing! X" Lucinda T
"Happy 20th Anniversary to all the team that make you such an amazing charity. Thank you for making such a huge difference to us all, for the years of unending support throughout our keto journey and beyond and for being the place and the people I have always been able to turn to xx" Kay S
"Providing a Daisy Garland alert mat through a chance referral, led to us sleeping again at night, giving our body and minds the opportunity to rest for a while. Mindfulness sessions and the FB group have also helped me with some breathing techniques to unwind. Your help and understanding, answering my questions... as well as connect with others in the same boat, albeit every journey is different. Our purple world. Sharing the love and our gratitude for your incredible support to SO many " Joanna P
"We have been raising money for The Daisy Garland now for 8 years, from cake and sweet sales, sponsored walks, work quizzes…. to Halloween parties and soon the London Marathon. To this day, I can’t believe that parents of children with epilepsy are still sent home from hospital - to sleep in shifts or hope their senses wake them. To us, the monitors are priceless and the amazing night-time seizure monitor programme from The Daisy Garland not only saves children’s lives, but gives parents the peace of mind to sleep. This is what keeps us fundraising for The Daisy Garland every year. Love Tara, Tinus, Luke and Eva xx"
"My Wife Lucy Bennett & I have been raising funds for The Daisy Garland for over 10 years now. I'd love to tell you we walk, run, cycle, swim or climb mountains but we don't . We preferred to take the less physical option so we organise a Golf Day & more recently a race night as well. June of this year was our 11th fundraising effort with over £20k raised to date. To see the work & support that the charity gives to the families who need it makes it all worth while. We are very proud of the support we get from our usual 80+ field of golfers & our much appreciated sponsors for the pennies we together raise for this wonderful Charity." Gordon B
"I love TDG dearly and always will! I think we were taken under caring Daisy's umbrella some10 years ago (Isabelle is now 14y). The Daisy Garland charity was suggested to us by another charity after waiting for some months, on their list, for the epilepsy monitor. We received Isabelle's monitor very quickly from TDG. But then I found something else, something that saved me, my sanity. You were the very first and only people who knew exactly what having uncontrolled epilepsy meant to children and to their mothers and offered your full understanding and support through your own experience and all available knowledge that was up there. We had no medical or any other professional at that time (or any one else really) who had acknowledged and accepted my fear, the seriousness of condition, who'd properly explained diagnosis and treatments as well as reassured that they will do everything they possibly can to help and save Isabelle. You, did it all and I felt safe and not alone any more. And off course thanks to you we went on a magical Keto journey! And we are still here today with you for our every hiccup and nightmare and joy and silliness together with so many others like us! Love you, squeezing you tight, wishing you all the health, joy and peace! 🥳 ☔️ 🌼 💜 Isabelle, Toby, and me 🙂 xxx"
"In 2015 our lives changed when our daughter started having seizures when she was just 17 weeks old, we were on this rollercoaster but in 2016 when our daughter was diagnosed with Dravet syndrome, our world just seem to crumble around us. When the hospital said they wanted to try the Ketogenic diet, we did not have a clue but with the help of the dietitian and the hospital putting us in touch with The Daisy Garland, it was a game charger, from the Welcome Box to a listening ear from Sara and her team, and being added to the facebook page of the daisy garland Keto Cafe was priceless. The Daisy Garland also provide life saving sats monitors, which has definitely helped alert us to my daughter's seizures but also helped me to get some very much needed zzzz. Daisy Garland also work hard to get to get money off deals for keto-friendly food, as we all know keto food can be very expensive. The Daisy Garland regularly put up giveaways of new keto food to try or accessories for the kitchen. During covid, The Daisy Garland put on some online Mindfulness classes with the amazing Gillian Higgins, to say they were a life saver for my own mental health is no exaggeration. Since then I have had the privilege to go on Daisy Garland Mindfulness retreats, which has been amazing, I have met so many wonderful people, who I know will be friends for life. Just talking to people who understand makes such a difference and you don't feel so alone. Also another great opportunity The Daisy Garland has provided was the Green Shoots project, which has involved all 3 of my daughters, which has been amazing for them to do together. Sara and David, you should be so proud of what you have achieved and how many families you have helped and supported, you have literally saved the lives of many children. Two of my daughters have fundraised for The Daisy Garland in the past and they are currently thinking of different ideas to help. I also find that even though Sara has contact with so many parents and families, she knows exactly who we are and it always feels so personal. The Daisy Garland doesn’t just support the child with epilepsy, they support the whole family and for that I will forever be grateful. Daisy lives on in all our kids for what you do for all of them. Thank you will never be enough for what you have done for Ellie and our family x" Nicola J
"The Daisy Garland has been a lifesaver for us, their continued support, advice and knowledge is invaluable. I don’t think we could have done the keto diet so successfully without them. We love the Keto Cafe, everyone in there is so loving and friendly and no matter what the question someone can always help. Arlo has been one of the miracle stories of keto, since starting he has become SEIZURE FREE and we’ve been able to successfully wean off one drug and are half way through another. Again I don’t think we could have done this as well without the knowledge we get from The Daisy Garland. We love this charity so much, thank you for everything you do xxx" Poppy D
"Amazing!! Fab charity, lovely supportive staff and all round life savers" Emma. C, epilepsy nurse - Somerset
"What The Daisy Garland means for me in one word? HOPE. Anna is on the keto diet much over 10 years and it save her life. There was a time when she had 10 different seizures daily. Anna isn’t seizure free (she has 2-3 fits every month) and she is still on 3 medicines. But the ketogenic diet plays a significant part in her improved condition. When we tried to wean the diet, her condition worsted, therefore it's for life for Anna. After time we nearly lost her, we have cheeky teenager now. And it's not only the diet and monitors what help. Sara and her team are always here just for uplifting chat, advices, and support which saved my sanity in difficult times. There isn't enough thanks for their hard work. They are Queens and Kings of hope. Thank you" Honza H
"Sara and the Daisy Garland Charity have been supporting us for over 7 years now. I remember first contacting them when we were having frequent and prolonged seizures and didn’t know where else to turn. I was scared but they helped more than they’ll ever know. I decided not to apply for a bed alarm as I thought there would be other families who would need it more. My daughter then was ventilated after a 2 hour seizure at 11 months and we received the dravet syndrome diagnosis. The Daisy team were brilliant, supporting us, sending a bear and goodies for her and checking in during the early dark days - providing us with a bed alarm quickly when I realised we did in fact need it to allow us to function - which still, 7 years later alerts us to nocturnal seizures. I had hoped we wouldn’t need the alarm and perhaps the epilepsy would go away - slightly naive but an understandable feeling. The alarm itself, undoubtedly saved her life during a 48 min seizure where she had respiratory arrest - without it there is a good chance we may not have woken and she wouldn’t be with us. It gives us peace of mind and lets us sleep. The work the charity do is outstanding and truly life saving. They are always on hand to give emotional support, they have run Mindfulness courses and also provide wonderful messages of support through their Facebook page. They know firsthand how cruel and dangerous drug-resistant epilepsy can be and have created a wonderful charity whilst remembering beautiful Daisy. Thank you for your on going support. Happy 20th birthday xx" Claire F
"The Daisy Garland first gave my son a sleep monitor, the process was easy and quick. Then we were lucky enough to try keto for over a year and then k.vita with positive results. The Daisy Garland have run support groups for all parents on this journey throughout! It really is very amazing! Thank you for being the amazing charity that you are! We still appreciate you!" Holly W
"Happy 20th birthday! We were on a waiting list 11 years ago for a dietician to be placed at the Royal Manchester Children’s Hospital & with your help she arrived in the form of the lovely Vicki Whiteley, Daisy Garland Ketogenic Dietitian. You have both been a constant source of advice & support over the past 11yrs as we have navigated our ketogenic journey. Our little girl is thriving & this wouldn’t be the case if we hadn’t finally gotten control of those wretched seizures. Thank you so much, we will always be very grateful x" Claire L
"The Daisy Garland Support Group has been such a blessing in our journey with Nusra's epilepsy. When she was just 5 months old, and we’d already spent time searching for answers, medications weren’t helping, and we noticed that carbs seemed to impact her seizures. Meeting The Daisy Garland team was a turning point. They provided us with guidance on the ketogenic diet, helping us find new ways to manage her epilepsy that fit her needs. Even now, they continue to support us with resources and options to keep carbs low and stick with keto, giving us hope and practical tools for Nusra’s health." Sadia. B
"Happy 20th birthday to the Daisy Garland! Thank you for the support and reassuring you offer to our families!" from the Epilepsy Nurses at Leeds General Infirmary xx
"You are so kind to us all…….. Tia would not be where she is today without your help, love the whole family we thank you. 🥰 🥰 🥰 💜 💜💜 💜💜" Mal C
"We were already on the diet for over a year when we discovered The Daisy Garland now we're part of the family." Dawn B"Congratulations to The Daisy Garland for the 20 years of dedication and support you have provided to families, carers and individuals following a Ketogenic Diet! #ketogenicdiet #TogetherForGlut1" Trudy M
"Congratulations on 20 years Thank you for all you do for everyone" Beth C
"Wow 20 years. So grateful for the life u have given my daughter. The keto diet took her off all the meds. We did 3 years on the keto diet and without this group I could not of done it. 6 years later only small seizures but her eye contact and quality of life has improved so much. Cannot ever thank you enough xx" Cathy TH
"Congratulations on your amazing legacy for Daisy xxxx" Chelle W
"Where do I start…… The Daisy Garland saved our family when we were so desperate for someone to help us through fear of losing our son. The love and support you showed us from the start changed our lives. We came to you when we were so desperate for help to try and save our little boy Bobby. We were so scared of losing him at night, constantly being ventilated, not knowing what to do. We were so kindly donated a nighttime epilepsy monitor, from that night we felt he was so much safer. Over the years The Daisy Garland have provided us with vital advice & supported us all as a family. We tell everyone how valuable you are & we will forever be grateful for what you have done for us! Thank you for all you do for us all 💙 xxx" Lauren B
"Happy anniversary" Vicki T
"THANK YOU, YOU DA BEST" Helen C
"Congratulations to you all at Daisy Garland for all your hard work over the last 20 years. We are so grateful for your support. Such a wonderful legacy for Daisy xx 💜 " Bev A
"Attended one of your Charity Balls with my beautiful late friend Elaine. You helped her and her wee girl Amy so much. Thank you for everything you do, you are wonderful people Daisy's memory lives on xx" Karen DK
"Daisy Garland, is an amazing charity they helped me and my daughter. They offered support around the keto diet and night time monitor. This gave me piece of mind whilst she slept, and made both of our lives better. Daisy's Keto Cafe support group was great in time of need and someone was always there to offer a helping hand or give advice. When she passed the support continued and the charity are still there for a helping hand. I’m grateful that they help families in the way they do and my journey wouldn’t have been as good without them. Thank you" Laura. D
"Happy 20th birthday! We have so much to say about the Daisy Garland Charity and how wonderful and awesome it is! Firstly, a huge thanks to the team who work endlessly to help children / young people! We really do appreciate it! We have to take a moment to think about Daisy and her family too. We are in awe of your strength, a beacon of support and light when those clouds form. Our journey is nearly 8 years in. 23rd October 2019 is a very special day for us, it was the day we reached out to Sara and her team, desperate for help - sick of medications / combo fails - more meds/ more seizures… everything was out of control. The team gifted us a monitor as we just didn’t sleep. Which we continue to use every night and is probably one of the most looked after items in our home (it was gifted by Teddy’s family - thank you so much). The support we had for nearly 3 years on the keto diet was amazing! The advice, guidance and support helped us to navigate a whole life style change. I can honestly say it was the best change and give us some respite from the medication roundabout! I do think we are still seeing the magic, even though we’ve weaned off. I think we will revisited the diet in the future and see our wean as a ‘break only’. We have learnt so much from the speaking to others, listening to peoples lived experiences and seeing how others manage tricky situations related to this journey. Things are still tricky here but I can honestly say that we would not been in a brighter position had we not stumbled across the Daisy Garland charity. I am so happy and relieved we found you as this can be such a hard journey at times and knowing you’re not alone is a huge strength! We have a little girl who is now loving life!" Amanda. W
"Congratulations on 20 fabulous years . Very grateful for all the support & love you have shown us & everyone over the years. Xxx" Vanessa G
"Happy birthday Daisy Garland!!! Thank you for your ongoing support and dedication!" Iuliana I
"Congratulations David, Sara and the team for having such big hearts to get to know and love each and every one of us… Being there for Hope on the Keto Diet was amazing in itself, in the beginning I didn’t really understand that you were helping me too, to grow & see the beauty of each day to cherish & not to wish away because of seizures & epilepsy… Hope had a wonderful starter pack, full of things we didn’t know we would need. Later she joined your Green Shoots project & what a wonderful idea that was! I had immediate access to our wonderful community in the Facebook group, on the really down days & posting to help others see they weren’t alone - you just seemed to sense what was needed & provide it, building on conversations & understanding us individually… The Daisy Garland a precious commodity that we each need in our lives… When Hope’s started to breath-hold at the beginning of her seizures at night, we were worried because they started so silently - your awesome charity granted us a SATs monitor, which has given us peace of mind & valuable data to help us understand Hope’s seizures & we now believe that the monitor may even be pulling her out of some of her seizures before they get going… Next the loving parent care you provide us through the Mindfulness sessions & absolute wish to share this with as many parents as possible, I feel valued and understood through a close bond with other families I have met in person through your care… I am humbled daily as you seem to give and give and give, and yet I cannot even come close to giving back to you & others what you have given us… Thank you so much TDG x We love you with all our hearts x" Jo L
"I came across Daisy Garland I read Daisy story I cried so much thinking about Daisy and my own little girl. Then her parents how strong and amazing they must be. U do incredible work and help so many families including mine. U have help my daughter and continue u to help us as a family. 20 years strong just shows how hard you all work. Thank you we will be forever grateful Lisa and Aurora " Lisa S
"Happy 20th Birthday! From the minute we found The Daisy Garland we've felt part of such a fabulous family. The help, support and encouragement has been the world to us and the safe space you provide invaluable. Thank you for being amazing and may you have many amazing 20th birthday celebrations xx” Sara L
"Congratulations Team The Daisy Garland! Two decades of care, support and love for the families of very sick children. It is so inspiring that out of such deep heartbreak and personal loss, you have been able give of yourselves so generously, knowing so well the incredibly tough journey we are on. Thank you for being our most passionate advocate and support. I can’t imagine this without you walking right alongside us. The Daisy Garland will always hold a very special place in our hearts " Iona C
"Amazing milestone…fantastic achievement. Yours was one of the first groups I followed and without it and your unwavering support cheerleading us on, I’m not sure where we would be. Forever grateful and forever in our hearts.xx" Tracey
"Happy Birthday thank you so much for all your help, support and kindness you are a truly amazing team xxx" Jane C
"Happy 20th birthday Such an amazing team. Thank you for all your help and support. Met some lovely people through your Keto Cafe platform you all are truly doing an incredible job. " Kubra S
"Happy Birthday Daisy Garland. So thankful for all that you do xxx" Ceri-ann B
Happy Birthday Daisy Garland. So thankful for all that you do xxx
"Wow 20 years. So grateful for the life u have given my daughter. The keto diet took her off all the meds. We did 3 years on the keto diet and with this group i could not of done it. 6 years later only small seizures but her eye contact and quality of life has improved so much. Cannot ever thank you enough xx" Cathy H
"You have turned a complete tragedy into a beautiful labor of love. The loving work you have done is to be applauded loudly. Hats off to Sara, David and Grace. And my love and admiration to you always." Julie G
happy birthday Daisy Garland is such an amazing charity and help me and my family in such a dark time and many many more for our families. We are so grateful. Thank you for all that you do. xx" Joanne
"Huge congratulations 🥳 you are the most special, inspirational and caring people 💜 Thank you for supporting us through the hardest of times and beyond - it's hard to put into words the way you reach out, listen and support families like ours. So much love to you 💜xxxx" Janeski
"The Daisy Garland you're simply incredible. Long may you continue to do the most valuable thing for families like ours. The support I never realised I needed. A Godsend, honestly. Forever grateful x" Gaynor
"Oh my gosh! Huge congratulations! What an honour to know you, to call you my dear friends and to watch the love pour out! I'm so proud of you!" Julie J
"I am writing this post to celebrate the 20 year anniversary of the charity Daisy Garland. This amazing charity has been supporting many families with children suffering with epilepsy. Daisy Garland supply night time monitors to help keep their children safe at night. Daisy Garland also fund Keto Dieticians in hospitals to help implement specific dietary needs of many children. Our family has been supported by Daisy Garland in the continuing journey of our amazing Grandson Oran. Wishing all at Daisy Garland that help deliver these amazing services and support. May you long continue with this amazing work. Sending our love and appreciation to you all. xxx" Ann K
"What an achievement - wishing you a Happy 20th birthday. You must all be so proud of all that you have done over the years to help your families. I hope you have all had a very well deserved celebration." Ketocare
"A very happy and well deserved 20th anniversary to all at The Daisy Garland. A few years ago, I reluctantly reached out to you for some advice about night time monitors for my son Will. He had gone into his new home, supported by the most wonderful team of people I could dream of but they needed some extra reassurance at night time, managing his seizures. I merely asked a question about which monitor they would recommend. Within an hour, I had heard from Karen. She advised me first and foremost about what was available then went on to say that they would fund it for him. To say I was completely blown away by this is an understatement. For 25 years we have managed every bit of care and support our precious boy needed and not once did we ask for anything. This came out of the blue and, turns out, it was simply fantastic. Will had a monitor in a matter of weeks with minimal fuss. His night times got much less stressful for the staff in his house. How wonderful to have that support. We could not thank them enough for the peace of mind their gift of better sleep gave us all. My beautiful boy sadly passed away a few years ago. Epilepsy really is the worst thing. Throughout all of that horrendous time for us as a family, The Daisy Garland was there for us. We were never far from their thoughts and prayers. We felt their love then and now. Always. I hope they are able to help children, their families and loved ones for many years to come with their vital knowledge and respect for all things epilepsy. You're simply incredible. Long may you continue to do the most valuable thing for families like ours. The support I never realised I needed. A Godsend, honestly. Forever grateful x Thank you from the bottom of our hearts x" Gaynor S
"The biggest and best happy birthday, you have been with us on our journey for 10 years when Sara found me in despair on an epilepsy group, from that moment The Daisy Garland threw us a life line they have kept us afloat and alive ever since. Thank you will never ever be enough for the love care and support you have given us, through our highs and lows, you have reached out to us, encouraged us, advised us, you were our light in the darkness, showing us the way, when there was none! Because of you we belong to a community of parents and carers who can speak openly, support without judgement, cheer from the sidelines, somewhere unique where we can all belong. We are so privileged to be able to say we are a part of the Daisy Garland family, and immensely proud to be a part of you beautiful girl's legacy. HAPPY 20TH BIRTHDAY." Justine K
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