Justine Urwin, Daisy Garland Dietetic Support Worker - Bristol Expand A big Daisy welcome to Justine Urwin, our newest Daisy Garland Dietetic Support Worker, who has joined the team at Bristol Royal Hospital for Children! Justine is truly brilliant and will be a wonderful support to the busy Bristol team and the lovely families under their care. To read more about Justine and our team of keto dietitians, please click on the link below - OUR DAISY GARLAND KETOGENIC DIETITIANS
Charity Film Awards Expand We are absolutely over the moon to learn that we have reached the shortlist for the prestigious Charity Film Awards! A big Daisy 'Thank You' to everyone who has voted for our film 'The Daisy Garland - Capturing The Essence of our Work' in the Charity Film Awards! We will be sure to keep you posted - please watch this space! 🎉🎉
Working in collaboration with fifteen NHS Trusts Expand We are the leading UK charity funding ketogenic dietitians and dietetic support workers who work in NHS hospitals countrywide, treating thousands of children who suffer from drug-resistant epilepsy with the ketogenic diet. Each full-time dietitian costs c.£48,000 pa. Once a hospital has identified the need for a ketogenic service the consultant responsible contacts us to request funding. We offer pump-prime funding, usually for 2/3 years, on the understanding that a business case evidencing the success of the service is put forward to the hospital Trust to ensure that continued funding will be available when our funding ends. Our funding allows NHS hospitals to develop and expand ketogenic services and our proven success rate in Trust take overs has allowed us to make this medical-led diet widely available, free of charge, to families nationwide. In 2019 we funded our first two Daisy Dietetic Support Workers, who work within ketogenic services ensuring lengthy waiting lists are substantially reduced. Our work in the promotion of the ketogenic diet as a therapy for drug-resistant epilepsy has positively changed the way it is viewed by the medical profession and we are thrilled that it has been wholly embraced by the NHS. Our work in this field has been life-changing and is on-going. Hospital Trusts benefitting from our ketogenic funding - Royal Hospital for Sick Children, Edinburgh Royal Hospital for Sick Children, Glasgow Leeds Children's Hospital Royal Manchester Children's Hospital Sheffield Children's Hospital Queen's Medical Centre, Nottingham Royal Derby Hospital Birmingham Children's Hospital Oxford Children's Hospital St George's Hospital, London Evelina London Children's Hospital Royal Berkshire Hospital, Reading Bristol Royal Hospital for Children Royal Devon and Exeter Hospital Derriford Hospital, Plymouth As one of the biggest ketogenic diet services in the UK, with an ever-increasing demand, our waiting list for the ketogenic diet has risen significantly. With timely funding from The Daisy Garland for a new dietitian we will be able to reduce the waiting time for children with drug-resistant epilepsy. Dr Shakti Agrawal, Consultant Paediatric Neurologist at Birmingham Women's and Children's Hospital. Thank you for all of your help to date. It has been great to see the effectiveness of The Daisy Garland service develop and meet the needs of patients and families across the region. We are excited we will now be able to build the service even more to meet the increasing demand, and train other dietitians within the team to ensure the service is a success into the future. Mike McLean, Service Lead Paediatric Dietetics, Royal Hospital for Sick Children, Edinburgh.
Points of Light Expand We were extremely proud to receive a Points of Light award from The Prime Minister, Theresa May, given in recognition for our outstanding contribution to the community.
'TEAMDAISY21' Snowdon trek Expand On the hottest August BH weekend on record The Daisy Garland climbed Mount Snowdon to mark what would have been Daisy's 21st year.
Hannah Queenan, Daisy Garland Ketogenic Dietitian - Sheffield Expand A very warm welcome to our newest recruit, Hannah Queenan. Hannah joins our team of Daisy Garland Ketogenic Dietitians working alongside Hannah Taylor and her team at Sheffield Children's Hospital. Hannah's arrival will provide a long awaited enhanced Ketogenic service.
Hannah Warn, Daisy Garland Dietetic Support Worker - Bristol Expand Hannah Warn, Daisy Garland Ketogenic Dietetic Support Worker, joins the keto team at Bristol Children's Hospital, one of the busiest ketogenic services in the UK.
The Daisy Garland Butterfly Ball - London Expand Our Daisy Garland Black-tie Ball, held in celebration of what would have been Daisy's 21st birthday was an evening to remember. 246 guests enjoyed a sparkling evening in the 5-star splendour of the Chelsea harbour Hotel, London. It was the perfect moment to launch our charity film, which received rapturous applause. our grateful thanks to Will Foxwell for putting the film together for us and to our wonderful Patrons, Jane Asher, Rikki Londesborough and Anne Wadsworth OBE for their valued support in raising awareness of our vital work.
The Daisy Garland film Expand Click on the link below to view The Daisy Garland charity film and learn more about our vital work.
Purple Day (Worldwide Epilepsy Awareness Day) - March 26th Expand 103 big-hearted supporters went purple for us - beards, braids and buns were coloured various shades of purple raising much needed awareness about childhood epilepsy as well as boosting charity funds.
Association of Surgeons in Training Conference (ASiT) - Belfast Expand David and Sara Garland were guest of honour speakers at the Association of Surgeons in Training Annual Gala Dinner in Belfast. David's speech, raising awareness of the ketogenic diet, was very warmly received and generated a great deal of interest. At the end of the evening, Sara and David were presented with a cheque for £1,500, the proceeds of the raffle. We are enormously grateful to ASiT for their support
Daisy Garland ketogenic cookery days Expand Keto pancakes, meringues, tasty main courses and tempting treats were on the menu at our Newbury ketogenic cookery masterclass, leaving our Daisy families feeling encouraged and inspired. The events do a wonderful job of breaking down the barriers and isolation that come hand-in-hand with having a child with drug-resistant epilepsy. Daisy Garland ketogenic cookery days are held throughout the year, countrywide. Keep an eye on our events page and The Daisy Garland Facebook page for up-to-date information.
British Paediatric Neurology Association Conference - Liverpool Expand Karen Wyett and Sara Garland The Daisy Garland was invited to take a stand at the BPNA Conference in Liverpool. With key speakers from around the globe, it was an honour and a great pleasure to be part of this important annual event held for the paediatric neurological community in the UK. Our stand was extremely popular with delegates and speakers as we raised awareness of drug-resistant epilepsy, the ketogenic diet and the important work we do within the epilepsy sector. Daisy Dietitian Vicki Whiteley (centre) presenting Ketogenic Quality of Life Poster.
Collaborating with two new NHS trusts - Birmingham and Sheffield Expand The Daisy Garland work in collaboration with fifteen NHS trusts. Birmingham and Sheffield are the latest two trusts to receive ketogenic funding from The Daisy Garland.
'Time4Me' - family support programme Exeter Expand As part of our Family Support programme we hosted our second Daisy Garland family get-together at Bear Feet, Exeter. Nineteen of our families came along to spend a few hours of relaxed quality time together. Mums, dads, carers and grandparents enjoyed chatting while the children took advantage of the safe, sensory environment to let off steam. Afterwards everyone sat down to a delicious tea, a keto tea for those on the ketogenic diet, and every child left with a special Daisy goody bag. Please keep your eye on our Events page and Facebook page for information about future events. One mum told us - I've had such a brilliant time today, and my shy and retiring nine year-old son has made a new best friend! As a family, we find your ongoing support invaluable.
Daisy's Keto Café - ketogenic parent support group Expand Daisy's Keto Café, our on-line ketogenic parent support group, is a buzzy interactive café, accessed via our Facebook page. This closed, private group is a safe place to share thoughts, discuss worries, exchange recipes, and ask for advice from other keto parents. Marian our Daisy Garland Ketogenic Nutritionist is always on hand offering free ketogenic help and guidance. Family support is our top priority and you will find this in abundance in Daisy's Keto Café
Lothian NHS take over funding The Daisy Garland ketogenic service at Edinburgh Children's Hospital Expand The Daisy Garland are delighted to announce that after funding a ketogenic service for three years at the Edinburgh Children's Hospital, NHS Lothian has agreed to take over the funding. We are exceedingly proud to have initiated and developed this service to a point where its value and effectiveness as a front-line treatment has been recognised
Oxford NHS trust take over Daisy Garland ketogenic funding Expand We are delighted to announce that after nearly three years of Daisy Garland ketogenic pump-prime funding, Oxford Children's Hospital have agreed to take over funding this very busy and highly successful service.
Marian Devlin - Daisy Garland Ketogenic Nutritionist Expand Marian, a former Daisy Garland Ketogenic Dietitian, brings a wealth of expertise and experience to Daisy's Keto Café, our on-line parent support group. Marian is always on hand to help and encourage, compiling tasty keto recipes, offering enhanced support and guidance for families - old and new - on the ketogenic diet.
Raising epilepsy awareness Expand Our raising epilepsy awareness posters are available FREE of charge on request. Please email [email protected] for more information.
The Daisy Garland at Westminster Expand David and Sara Garland were invited to an important meeting at Westminster with senior representatives from NHS England and Dr Sarah Wollaston MP and Chair of the Health Select Committee to discuss the urgent need for improved epilepsy services countrywide and to highlight the alarming increase in numbers of deaths in people with neurological conditions. We asked for steps to be taken making it easier for charities like ourselves, saving the NHS thousands in drugs and inpatient costs, to gain access to government support and funding.
The Daisy Garland award ceremony at The House of Lords Expand Held to recognise and thank some of the very special people who go beyond what is expected of them to help children with drug-resistant epilepsy. The event, attended by 120 guests, was hosted by The Right Honourable, The Viscount Ridley, DL FRSL FMedSci, and was held in the Cholmondeley Room at the House of Lords. Over a sumptuous afternoon tea, the fifty-one award winners were presented with framed certificates There were lots of surprised faces and many a tear was shed. It was certainly an afternoon to remember.
The Daisy Garland feature in The Daily Telegraph Expand Click here to read more about the ketogenic diet and the positive effects it can have on drug-resistant epilepsy.